Emma Helledie, Kristoffer Marsaa, Tina Lyngstroem, Mogens Groenvold, Per Sjoegren, Lise Nottelmann, Torben Strodl Andersen, Anette Hygum, Jette Paerregaard, Dorte Lange Hoest, Henrik Anker Nielsen, Mette Kelstrup Hallas, Irene J Higginson, Mette Asbjoern Neergaard
{"title":"Development of a national strategy for palliative care.","authors":"Emma Helledie, Kristoffer Marsaa, Tina Lyngstroem, Mogens Groenvold, Per Sjoegren, Lise Nottelmann, Torben Strodl Andersen, Anette Hygum, Jette Paerregaard, Dorte Lange Hoest, Henrik Anker Nielsen, Mette Kelstrup Hallas, Irene J Higginson, Mette Asbjoern Neergaard","doi":"10.61409/A12240872","DOIUrl":null,"url":null,"abstract":"<p><strong>Introduction: </strong>In 2020, the Danish National Audit Office (Rigsrevisionen) criticised the Danish palliative care (PC) provision. The Board of the Danish Association for Palliative Medicine (DSPaM) recognised an urgent need for a national strategy to improve PC in Denmark. The Board wished to develop a strategy which ensured acceptance and legitimation internationally and within the DSPaM. The aim of this study was to describe the development of the DSPaM 'National strategy of palliative care for patients with life-threatening diseases'.</p><p><strong>Methods: </strong>The Cicely Saunders International (CSI) action plan, 'You matter because you are you, an action plan for better palliative care,' seemed applicable because of its extensive, evidence-based content. A thorough translation and cultural adaptation were followed by group discussions and a Delphi process among DSPaM members.</p><p><strong>Results: </strong>The Delphi process underwent eight editions before the final version was approved by the DSPaM Board in January 2024. A total of 36% of the members participated in the group discussions in January 2022. The response rates were 43% in the first and 62.8% in the second survey, with a final average member agreement of 92.7%. The main differences were that the CSI action plan mentions COVID-19 pandemic and patient empowerment, whereas the Danish strategy document refers to socially vulnerable patients.</p><p><strong>Conclusions: </strong>A Danish strategy document for PC was developed through a Delphi process involving the DSPaM members. The Danish strategy document was approved by a large majority of DSPaM members, thus providing a solid ground for a common national strategy for PC in Denmark.</p><p><strong>Funding: </strong>None.</p><p><strong>Trial registration: </strong>Not relevant.</p>","PeriodicalId":11119,"journal":{"name":"Danish medical journal","volume":"72 6","pages":""},"PeriodicalIF":1.0000,"publicationDate":"2025-05-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Danish medical journal","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.61409/A12240872","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"MEDICINE, GENERAL & INTERNAL","Score":null,"Total":0}
引用次数: 0
Abstract
Introduction: In 2020, the Danish National Audit Office (Rigsrevisionen) criticised the Danish palliative care (PC) provision. The Board of the Danish Association for Palliative Medicine (DSPaM) recognised an urgent need for a national strategy to improve PC in Denmark. The Board wished to develop a strategy which ensured acceptance and legitimation internationally and within the DSPaM. The aim of this study was to describe the development of the DSPaM 'National strategy of palliative care for patients with life-threatening diseases'.
Methods: The Cicely Saunders International (CSI) action plan, 'You matter because you are you, an action plan for better palliative care,' seemed applicable because of its extensive, evidence-based content. A thorough translation and cultural adaptation were followed by group discussions and a Delphi process among DSPaM members.
Results: The Delphi process underwent eight editions before the final version was approved by the DSPaM Board in January 2024. A total of 36% of the members participated in the group discussions in January 2022. The response rates were 43% in the first and 62.8% in the second survey, with a final average member agreement of 92.7%. The main differences were that the CSI action plan mentions COVID-19 pandemic and patient empowerment, whereas the Danish strategy document refers to socially vulnerable patients.
Conclusions: A Danish strategy document for PC was developed through a Delphi process involving the DSPaM members. The Danish strategy document was approved by a large majority of DSPaM members, thus providing a solid ground for a common national strategy for PC in Denmark.
导读：2020年，丹麦国家审计署（Rigsrevisionen）批评了丹麦姑息治疗（PC）条款。丹麦姑息医学协会（DSPaM）董事会认识到迫切需要制定一项国家战略来改善丹麦的PC。麻管局希望制订一项战略，确保在国际上和在执行局内部得到接受和合法化。这项研究的目的是描述DSPaM“对危及生命的疾病患者进行姑息治疗的国家战略”的发展。方法：Cicely Saunders International （CSI）的行动计划“你很重要，因为你是你，一个更好的姑息治疗行动计划”似乎是适用的，因为它的内容广泛，以证据为基础。在深入的翻译和文化适应之后，DSPaM成员之间进行了小组讨论和德尔菲过程。结果：在2024年1月DSPaM委员会批准最终版本之前，德尔菲过程经历了八个版本。2022年1月，共有36%的成员参加了小组讨论。第一次调查的回应率为43%，第二次调查的回应率为62.8%，最终的平均成员同意率为92.7%。主要区别在于，CSI行动计划提到了COVID-19大流行和患者赋权，而丹麦战略文件提到了社会弱势患者。结论：通过涉及DSPaM成员的德尔菲过程，制定了丹麦PC战略文件。丹麦的战略文件得到了DSPaM绝大多数成员的批准，从而为丹麦PC的共同国家战略提供了坚实的基础。资金:没有。试验注册：不相关。
期刊介绍：
The Danish Medical Journal (DMJ) is a general medical journal. The journal publish original research in English – conducted in or in relation to the Danish health-care system. When writing for the Danish Medical Journal please remember target audience which is the general reader. This means that the research area should be relevant to many readers and the paper should be presented in a way that most readers will understand the content.
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