The MBCRC Advocate Researcher Program (MARP): connecting advocates and researchers as collaborative partners in cancer research.

IF 7.6 2区医学 Q1 ONCOLOGY

NPJ Breast Cancer Pub Date : 2025-06-21 DOI:10.1038/s41523-025-00771-6

Hillary S Andrews, Igor L Bado, Amy Beumer, Isaac S Chan, Janice Cowden, Debbie Denardi, Gloria V Echeverria, Brooke L Gates, Marybeth Gilliam, Christine Hodgdon, Adrian V Lee, Joan Mancuso, Julia Maues, Steffi Oesterreich, Michael Papanicolaou, Katherine E Pendleton, Bob Riter, Kelly Shanahan, Anh M Tran-Huynh, Pavitra Viswanath, Stephanie Walker, Alana L Welm, Michelle M Williams, Garhett L Wyatt, Josh Newby

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Abstract

Involving patient advocates as partners in cancer research improves research and provides favorable experiences for both the researcher and the advocate. Previous work demonstrates challenges to establishing relationships between researchers and advocates, including uncertainty about why the relationships are necessary, how to establish them, what to say, and how they should be structured. To overcome these challenges, we established the Metastatic Breast Cancer Research Conference (MBCRC) Advocate Researcher Program (MARP) at the MBCRC in 2023. We outline the approach to the program to serve as a model for others interested in performing similar activities and report findings from surveys to establish evidence about the value of these relationships. The program connected 21 pairs of researchers and advocates, and participants responded to surveys about their experience, largely describing positive outcomes. Our hope is that a program like this could be used at any cancer conference in the future as we continue to encourage advocates and researchers to work together.

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MBCRC倡导者研究人员计划（MARP）：将倡导者和研究人员作为癌症研究的合作伙伴联系起来。

让病人的倡导者作为合作伙伴参与癌症研究可以改善研究，并为研究人员和倡导者提供有利的经验。先前的工作表明，在研究人员和倡导者之间建立关系面临挑战，包括不确定为什么这种关系是必要的，如何建立这种关系，该说什么，以及应该如何构建这种关系。为了克服这些挑战，我们于2023年在MBCRC建立了转移性乳腺癌研究会议（MBCRC）倡导者研究员计划（MARP）。我们概述了该计划的方法，作为其他有兴趣开展类似活动的人的模型，并报告了调查结果，以建立有关这些关系价值的证据。该项目将21对研究人员和倡导者联系在一起，参与者对他们的经历进行了调查，大部分都描述了积极的结果。我们希望像这样的项目可以在未来的任何癌症会议上使用，因为我们将继续鼓励倡导者和研究人员共同努力。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

NPJ Breast Cancer Medicine-Pharmacology (medical)

CiteScore

10.10

自引率

1.70%

发文量

122

审稿时长

9 weeks

期刊介绍： npj Breast Cancer publishes original research articles, reviews, brief correspondence, meeting reports, editorial summaries and hypothesis generating observations which could be unexplained or preliminary findings from experiments, novel ideas, or the framing of new questions that need to be solved. Featured topics of the journal include imaging, immunotherapy, molecular classification of disease, mechanism-based therapies largely targeting signal transduction pathways, carcinogenesis including hereditary susceptibility and molecular epidemiology, survivorship issues including long-term toxicities of treatment and secondary neoplasm occurrence, the biophysics of cancer, mechanisms of metastasis and their perturbation, and studies of the tumor microenvironment.