Barriers to health literacy of patients with cardiac implantable electronic devices: A qualitative approach.

IF 2.2 4区医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE

Health Information and Libraries Journal Pub Date : 2025-06-20 DOI:10.1111/hir.12581

Merve Erunal, Hatice Mert

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引用次数: 0

Abstract

Background: Living with cardiac implantable electronic devices requires patients to apply information skills.

Objective: To explore barriers to the health literacy of patients with cardiac implantable electronic devices.

Methods: This descriptive, qualitative study was conducted with 18 patients. Data were gathered via semi-structured, face-to-face interviews. Content analysis was applied to the data. The results were reported using the Consolidated Criteria for Reporting Qualitative Research (COREQ).

Results: Two themes emerged: 'Floundering patients'; 'Lackadaisical patients'. First theme involved four subthemes: 'An enormous unmet need for information'; 'The information source: The doctor'; 'Communication issues'; 'Preferences'. Second theme included two subthemes: 'Dependence on doctor' and 'Dependence on others'.

Discussion: Theme one revealed that patients found it difficult to evaluate the health information and assumed the doctor was the prime source of information, rather than other health professionals who might help provide the necessary education and counselling. Theme two was 'lackadaisical patients', who failed to access information, communicate with the healthcare provider, evaluate information, or take a role in the decision-making process due to their complete trust in doctors and informal caregivers.

Conclusion: These results suggested that nurses should play a role in the improvement of patients' health literacy, with the help of health information professionals.

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心脏植入式电子装置患者健康素养的障碍：定性方法。

背景：使用心脏植入式电子设备需要患者运用信息技能。目的：探讨影响心脏植入式电子装置患者健康素养的因素。方法：对18例患者进行描述性定性研究。数据是通过半结构化的面对面访谈收集的。对数据进行内容分析。使用报告定性研究的统一标准（COREQ）报告结果。结果：出现了两个主题：“挣扎的病人”；“懒洋洋的病人”。第一个主题包括四个次级主题：“大量未得到满足的信息需求”；“信息来源：医生”；“沟通问题”;“偏好”。第二个主题包括两个副主题：“对医生的依赖”和“对他人的依赖”。讨论：主题一表明，患者很难评估健康信息，并认为医生是信息的主要来源，而不是可能帮助提供必要教育和咨询的其他保健专业人员。主题二是“懒散的患者”，由于完全信任医生和非正式护理人员，他们无法获取信息、与医疗保健提供者沟通、评估信息或在决策过程中发挥作用。结论：护士应在卫生信息专业人员的帮助下，在提高患者健康素养方面发挥作用。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Health Information and Libraries Journal INFORMATION SCIENCE & LIBRARY SCIENCE-

CiteScore

6.70

自引率

10.50%

发文量

期刊介绍： Health Information and Libraries Journal (HILJ) provides practitioners, researchers, and students in library and health professions an international and interdisciplinary forum. Its objectives are to encourage discussion and to disseminate developments at the frontiers of information management and libraries. A major focus is communicating practices that are evidence based both in managing information and in supporting health care. The Journal encompasses: - Identifying health information needs and uses - Managing programmes and services in the changing health environment - Information technology and applications in health - Educating and training health information professionals - Outreach to health user groups