Observing Siblings of Children with Complex Medical Needs.

Abstract

This study examined the behaviors of siblings of child(ren) with complex medical needs (CCMN). Previous research indicates that these siblings may develop resilience and empathy, but also face risks like depression and poor social skills. To gain further insights, we completed surveys after observing family interactions. We reviewed 96 surveys, finding that siblings provided physical care 42.6% of the time and emotional care 32.5% of the time. Reactive outbursts were seen in 22.1% of cases, and 55.2% of siblings spent time alone, apart from their CCMN sibling. One-on-one time with parents was noted in 50% of observations, and siblings joined activities in 91.7% of cases. The siblings were mostly happy (73.7%), with some neutral (22.1%) and sad (4.2%). Conflicts occurred in 53.1% of cases, usually with mothers addressing the conflict. These findings show that siblings of CCMN often take on significant caregiving roles, which can affect their emotional and social development. Although the study was set in a vacation environment, it highlights the importance of recognizing the unique challenges these siblings face. More research is needed to understand how age and the severity of the medical condition influence sibling experiences.