{"title":"Experiences of Dietary Management and Social Adaptation in Young End-Stage Renal Disease Maintenance Hemodialysis Patients: A Qualitative Study.","authors":"Linghan Zhou, Liping Kang, Dongyang Wang, Qingmiao Li, Junfan Wei, Mengtian Li, Meng Li, Huawei Li","doi":"10.2147/PPA.S526917","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>To explore the experiences of young hemodialysis patients regarding diet therapy and social adjustment.</p><p><strong>Methods: </strong>This study used purposive sampling to select 19 young hemodialysis patients for semi-structured interviews at a tertiary hospital in Henan Province, China. We followed the Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines for qualitative research to ensure comprehensive reporting.</p><p><strong>Results: </strong>We identified five topic categories: \"Diet therapy perceptions\", including Lack of knowledge, imprudent attitude. \"Diet therapy behaviors\", including Vigilant Diet, Anxiety about water, Control of salt. \"Access to dietary information\", including Active acquisition, Passive acquisition. Family roles\", including Changes in dietary habits, Support of information, Reducing family involvement. Challenges of social adjustment\", including Barriers to work, Socialization Pain Points, Emotional distress, Looking for a way out.</p><p><strong>Conclusion: </strong>Young MHD patients recognize the importance of diet therapy and social reintegration but face barriers including knowledge gaps, inadequate support, and self-perceived burden. Key interventions should focus on: improved knowledge dissemination, optimized dietary education, nocturnal dialysis options, emotion regulation strategies, and enhancing self-efficacy. Strengthening national and societal support systems is critical for sustainable outcomes. Future research should employ longitudinal studies to track psychological adaptation and develop tailored, technology-assisted interventions for this population.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"1731-1745"},"PeriodicalIF":2.0000,"publicationDate":"2025-06-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12170795/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Patient preference and adherence","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.2147/PPA.S526917","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/1/1 0:00:00","PubModel":"eCollection","JCR":"Q2","JCRName":"MEDICINE, GENERAL & INTERNAL","Score":null,"Total":0}
引用次数: 0
Abstract
Purpose: To explore the experiences of young hemodialysis patients regarding diet therapy and social adjustment.
Methods: This study used purposive sampling to select 19 young hemodialysis patients for semi-structured interviews at a tertiary hospital in Henan Province, China. We followed the Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines for qualitative research to ensure comprehensive reporting.
Results: We identified five topic categories: "Diet therapy perceptions", including Lack of knowledge, imprudent attitude. "Diet therapy behaviors", including Vigilant Diet, Anxiety about water, Control of salt. "Access to dietary information", including Active acquisition, Passive acquisition. Family roles", including Changes in dietary habits, Support of information, Reducing family involvement. Challenges of social adjustment", including Barriers to work, Socialization Pain Points, Emotional distress, Looking for a way out.
Conclusion: Young MHD patients recognize the importance of diet therapy and social reintegration but face barriers including knowledge gaps, inadequate support, and self-perceived burden. Key interventions should focus on: improved knowledge dissemination, optimized dietary education, nocturnal dialysis options, emotion regulation strategies, and enhancing self-efficacy. Strengthening national and societal support systems is critical for sustainable outcomes. Future research should employ longitudinal studies to track psychological adaptation and develop tailored, technology-assisted interventions for this population.
期刊介绍:
Patient Preference and Adherence is an international, peer reviewed, open access journal that focuses on the growing importance of patient preference and adherence throughout the therapeutic continuum. The journal is characterized by the rapid reporting of reviews, original research, modeling and clinical studies across all therapeutic areas. Patient satisfaction, acceptability, quality of life, compliance, persistence and their role in developing new therapeutic modalities and compounds to optimize clinical outcomes for existing disease states are major areas of interest for the journal.
As of 1st April 2019, Patient Preference and Adherence will no longer consider meta-analyses for publication.