Experiences of Dietary Management and Social Adaptation in Young End-Stage Renal Disease Maintenance Hemodialysis Patients: A Qualitative Study.

IF 2 3区 医学 Q2 MEDICINE, GENERAL & INTERNAL
Patient preference and adherence Pub Date : 2025-06-12 eCollection Date: 2025-01-01 DOI:10.2147/PPA.S526917
Linghan Zhou, Liping Kang, Dongyang Wang, Qingmiao Li, Junfan Wei, Mengtian Li, Meng Li, Huawei Li
{"title":"Experiences of Dietary Management and Social Adaptation in Young End-Stage Renal Disease Maintenance Hemodialysis Patients: A Qualitative Study.","authors":"Linghan Zhou, Liping Kang, Dongyang Wang, Qingmiao Li, Junfan Wei, Mengtian Li, Meng Li, Huawei Li","doi":"10.2147/PPA.S526917","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>To explore the experiences of young hemodialysis patients regarding diet therapy and social adjustment.</p><p><strong>Methods: </strong>This study used purposive sampling to select 19 young hemodialysis patients for semi-structured interviews at a tertiary hospital in Henan Province, China. We followed the Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines for qualitative research to ensure comprehensive reporting.</p><p><strong>Results: </strong>We identified five topic categories: \"Diet therapy perceptions\", including Lack of knowledge, imprudent attitude. \"Diet therapy behaviors\", including Vigilant Diet, Anxiety about water, Control of salt. \"Access to dietary information\", including Active acquisition, Passive acquisition. Family roles\", including Changes in dietary habits, Support of information, Reducing family involvement. Challenges of social adjustment\", including Barriers to work, Socialization Pain Points, Emotional distress, Looking for a way out.</p><p><strong>Conclusion: </strong>Young MHD patients recognize the importance of diet therapy and social reintegration but face barriers including knowledge gaps, inadequate support, and self-perceived burden. Key interventions should focus on: improved knowledge dissemination, optimized dietary education, nocturnal dialysis options, emotion regulation strategies, and enhancing self-efficacy. Strengthening national and societal support systems is critical for sustainable outcomes. Future research should employ longitudinal studies to track psychological adaptation and develop tailored, technology-assisted interventions for this population.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"1731-1745"},"PeriodicalIF":2.0000,"publicationDate":"2025-06-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12170795/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Patient preference and adherence","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.2147/PPA.S526917","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/1/1 0:00:00","PubModel":"eCollection","JCR":"Q2","JCRName":"MEDICINE, GENERAL & INTERNAL","Score":null,"Total":0}
引用次数: 0

Abstract

Purpose: To explore the experiences of young hemodialysis patients regarding diet therapy and social adjustment.

Methods: This study used purposive sampling to select 19 young hemodialysis patients for semi-structured interviews at a tertiary hospital in Henan Province, China. We followed the Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines for qualitative research to ensure comprehensive reporting.

Results: We identified five topic categories: "Diet therapy perceptions", including Lack of knowledge, imprudent attitude. "Diet therapy behaviors", including Vigilant Diet, Anxiety about water, Control of salt. "Access to dietary information", including Active acquisition, Passive acquisition. Family roles", including Changes in dietary habits, Support of information, Reducing family involvement. Challenges of social adjustment", including Barriers to work, Socialization Pain Points, Emotional distress, Looking for a way out.

Conclusion: Young MHD patients recognize the importance of diet therapy and social reintegration but face barriers including knowledge gaps, inadequate support, and self-perceived burden. Key interventions should focus on: improved knowledge dissemination, optimized dietary education, nocturnal dialysis options, emotion regulation strategies, and enhancing self-efficacy. Strengthening national and societal support systems is critical for sustainable outcomes. Future research should employ longitudinal studies to track psychological adaptation and develop tailored, technology-assisted interventions for this population.

青年终末期肾病维持性血液透析患者饮食管理与社会适应的经验:一项定性研究。
目的:探讨青年血液透析患者饮食治疗与社会适应的经验。方法:本研究采用目的抽样的方法,对河南省某三级医院19例年轻血液透析患者进行半结构化访谈。我们遵循定性研究报告的综合标准(COREQ)指导方针,以确保全面的报告。结果:我们确定了五个主题类别:“饮食治疗观念”,包括缺乏知识,不谨慎的态度。“饮食治疗行为”,包括警惕饮食、水焦虑、控制盐。“获取饮食信息”,包括主动获取、被动获取。“家庭角色”,包括饮食习惯的改变、信息的支持、减少家庭参与。“社会适应的挑战”,包括工作障碍,社会化痛点,情绪困扰,寻找出路。结论:年轻MHD患者认识到饮食治疗和重返社会的重要性,但面临知识差距、支持不足和自我认知负担等障碍。关键干预措施应侧重于:改善知识传播,优化饮食教育,夜间透析选择,情绪调节策略和提高自我效能感。加强国家和社会支持系统对于取得可持续成果至关重要。未来的研究应该采用纵向研究来跟踪心理适应,并为这一人群开发量身定制的技术辅助干预措施。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
Patient preference and adherence
Patient preference and adherence MEDICINE, GENERAL & INTERNAL-
CiteScore
3.60
自引率
4.50%
发文量
354
审稿时长
6-12 weeks
期刊介绍: Patient Preference and Adherence is an international, peer reviewed, open access journal that focuses on the growing importance of patient preference and adherence throughout the therapeutic continuum. The journal is characterized by the rapid reporting of reviews, original research, modeling and clinical studies across all therapeutic areas. Patient satisfaction, acceptability, quality of life, compliance, persistence and their role in developing new therapeutic modalities and compounds to optimize clinical outcomes for existing disease states are major areas of interest for the journal. As of 1st April 2019, Patient Preference and Adherence will no longer consider meta-analyses for publication.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信