Addressing health disparities and equitable representation in cancer research through the initiative, 'The Patient and Public Involvement Cancer Research Group for Diverse Backgrounds'.

IF 1.2 Q4 ONCOLOGY
ecancermedicalscience Pub Date : 2025-04-10 eCollection Date: 2025-01-01 DOI:10.3332/ecancer.2025.1885
Saran Green, Aida Santaolalla, Beth Russell, Gincy George, Harriet Wylie, Maria Monroy-Iglesias, Ailbhe Lawlor, Mark Minott, Annette Carty, Vernon Bailey, Tene Green, Zhane Peterson, Charlene Young, Mieke Van Hemelrijck
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引用次数: 0

Abstract

This paper addresses the persistent underrepresentation of Black, Asian and minority ethnic communities in health research, particularly in the context of prostate cancer. Despite the disproportionately higher burden of cancer in Black, Asian and minority ethnic communities, their representation in research remains inadequate. This paper highlights the efforts of The Patient and Public Involvement Cancer Research Group for Diverse Backgrounds (Diverse PPI), a PPI group established to address this disparity. We describe the rationale behind Diverse PPI's formation, emphasising the need for targeted outreach and culturally competent practices. The group's activities include organising public engagement events, developing resources such as ARUARES (a tool designed to foster inclusive research) and collaborating with researchers on various projects. The paper illustrates how Diverse PPI has made a positive impact through collaborative working, empowering diverse ethnic communities and advocating for inclusive research practices. We conclude by emphasising the importance of similar initiatives in addressing health disparities and achieving equitable representation in cancer research.

通过“不同背景的患者和公众参与癌症研究小组”倡议,解决癌症研究中的健康差距和公平代表权问题。
本文解决了黑人,亚洲和少数民族社区在健康研究中的持续代表性不足,特别是在前列腺癌的背景下。尽管黑人、亚洲人和少数民族社区的癌症负担高得不成比例,但他们在研究中的代表性仍然不足。本文重点介绍了多元背景患者和公众参与癌症研究小组(多元PPI)的努力,这是一个为解决这一差距而建立的PPI小组。我们描述了多元PPI形成背后的基本原理,强调有针对性的外展和文化主管实践的必要性。该组织的活动包括组织公众参与活动,开发诸如ARUARES(一种旨在促进包容性研究的工具)等资源,并在各种项目上与研究人员合作。本文阐述了多元PPI如何通过协作工作、赋予多元种族社区权力和倡导包容性研究实践产生积极影响。最后,我们强调了类似举措在解决健康差距和实现癌症研究公平代表性方面的重要性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
3.80
自引率
5.60%
发文量
138
审稿时长
27 weeks
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