Community-Based Exercise Programming for Individuals with Parkinson's Disease: A Qualitative Study.

Abstract

BackgroundParkinson's disease (PD) is a neurological disorder that significantly impacts individuals, their families, and the healthcare system. Alongside drug therapies and surgical interventions, exercise has shown potential in improving motor and non-motor symptoms. This study explored perspectives of individuals with PD, care partners, and program providers regarding a community-based exercise program for PD.MethodsIndividuals with PD (Hoehn & Yahr stages I-III), on a stable medication regime, who participated in a PD-specific community-based exercise program twice weekly for at least 12 weeks, along with care partners and program providers were recruited. In-depth interviews were conducted with individuals with PD (n = 17), care partners (n = 7), and program providers (n = 3) from January to May 2024. Data were analyzed using an interpretative phenomenology analysis and mapped onto a behavior-change model. Two patient advisors and care partners assisted in data analysis and interpretation.ResultsParticipants highlighted the PD-specific nature of the program and group exercise benefits as key motivators. Pre-program challenges included difficulties obtaining a diagnosis, adapting to non-motor symptoms, medication side effects, and finding motivation. Post-program outcomes included symptom improvement, mutual motivation, community support, and reduced self-consciousness, prompting the recommendation of greater community awareness. Barriers to participation included transportation difficulties and cost. These findings suggest addressing barriers is essential to enhance accessibility and program benefits.ConclusionsThe PD-specific exercise program was perceived as beneficial to overall health and wellness, providing physical, emotional, and social benefits. A lack of awareness about the significance of exercise in PD remains a critical challenge.