The Diverse Experiences and Challenges of Individuals With Alopecia Areata: Survey Results From Finland.

Abstract

Alopecia areata (AA) is a chronic disease that significantly impacts well-being and quality of life. Despite its burden, professional support and treatment utilization remain low. This study investigated the experiences of 226 individuals in Finland with AA through an online survey. Most (82.7%) had at least one comorbid condition, most commonly atopic dermatitis (45.1%) and allergic rhinitis (43.4%). Depression and anxiety were reported by 22.1% and 23.0% of respondents, respectively. Those with ≥50% hair loss were significantly less likely to report higher overall well-being (odds ratio 0.60; 95% CI 0.38-0.96; P = .03), and experienced a greater negative impact on their relationships and social situations compared to those with <50% hair loss. The majority (82.7%) had not received any treatment for AA during the past year. Social media and peer support were the most common information sources. These findings highlight the need for improved patient education, and professional support. Healthcare providers should proactively offer guidance on treatment options and assess comorbidities to improve individual well-being.