Mental Health and Well-Being Support for Individuals Living With Skin Conditions: A Global Landscape Analysis of Patient Needs and Current Resources

Tammi Shipowick, Jennifer Austin, Nicole Sudiacal, Stephanie Miller, Jennifer A. Pereira, Christine Bundy
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Abstract

The impact of skin diseases can be devastating, encompassing physical symptoms such as bumps, rashes, hyper- or loss of pigmentation, redness, itch, pain and scarring. The consequences on mental health and well-being are often more detrimental, impacting the ability to conduct routine daily activities and engage socially. Given the prevalence of dermatological conditions, it is critical that resources are available to address these needs. We conducted a review of dermatology patient advocacy groups and health organizations’ websites to determine what types of resources to support mental health and well-being currently exist globally for individuals with skin conditions and identified 26 websites featuring resources such as sections dedicated to providing mental health information, programs on mental health topics and coping strategies, peer support forums, and counselling. Clinical trials and observational studies have demonstrated that many of these tools improve key mental health and well-being-related symptoms. In order for new and existing resources to be effective on a global scale, they should be delivered through methods that are sensitive to a spectrum of mental health-related stigma, and cultural beliefs. In parts of the world where individuals value privacy above openly speaking about one's feelings, or where smartphone adoption is ubiquitous (i.e., Europe, South-East Asia), digital health resources might hold the most potential for uptake. In regions such as Africa, and remote and rural Western Pacific, task-shifting, a process whereby laypeople are trained by health professionals to deliver community-based interventions, may be a promising format given mental health professional shortages. To provide optimal support for the mental health and well-being of those around the world with skin conditions, future efforts should focus on evaluation of the patient benefits offered by existing resources, and their adaptation and expansion to befit other world regions, and align with varied cultural needs and beliefs.

心理健康和福祉支持个人生活与皮肤状况:患者需求和当前资源的全球景观分析
皮肤病的影响可能是毁灭性的,包括身体症状,如肿块、皮疹、色素沉着过度或丧失、发红、瘙痒、疼痛和疤痕。对心理健康和福祉的影响往往更为严重,影响到进行日常活动和参与社会活动的能力。鉴于皮肤病的普遍性,提供资源以满足这些需求至关重要。我们对皮肤病患者倡导团体和健康组织的网站进行了回顾,以确定目前全球有哪些类型的资源可以支持皮肤状况的个人的心理健康和福祉,并确定了26个网站,其中包括专门提供心理健康信息的部分、心理健康主题和应对策略的项目、同伴支持论坛和咨询。临床试验和观察性研究表明,许多这些工具改善了关键的心理健康和福祉相关症状。为了使新的和现有资源在全球范围内有效,应通过对一系列与精神健康有关的耻辱和文化信仰敏感的方法提供这些资源。在世界上一些个人将隐私看得比公开谈论自己的感受更重要的地方,或者智能手机普及的地方(即欧洲、东南亚),数字卫生资源可能最有潜力被采用。在非洲以及西太平洋偏远和农村地区,由于精神卫生专业人员短缺,任务转移可能是一种很有希望的形式,即由卫生专业人员培训非专业人员以提供基于社区的干预措施。为了为世界各地患有皮肤病的人的精神健康和福祉提供最佳支持,未来的努力应侧重于评估现有资源提供的患者利益,并对其进行调整和扩展,以适应世界其他地区,并与不同的文化需求和信仰保持一致。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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