Size and Composition of Caregiver Networks Who Manage Medications for Persons Living With Dementia: Cross-Sectional Analysis of the 2011-2022 National Health and Aging Trends Study.

Abstract

Background: Family caregivers commonly help manage medications taken by persons living with dementia. Recent work has highlighted the importance of caregiver networks, which are multiple caregivers managing care for a single person, on managing care for persons living with dementia, especially medication management. However, less is known about the composition of caregiver networks.

Objective: The objective of this analysis was to describe the composition of caregiver networks that manage medications, the factors associated with helping with medications within caregiver networks, and whether racial or ethnic differences exist in caregiver network composition.

Methods: This cross-sectional secondary analysis used data from the National Health and Aging Trends Study (NHATS) "other person" files from 2011 to 2022. Descriptive statistics were calculated for caregivers who were identified as helping manage medications for a person with dementia. Mixed-effect logistic regression was used to determine factors associated with helping with medications among caregiver networks, with odds ratios converted to predicted probabilities using marginal standardization. A P value of .05 or less was considered statistically significant. Secondary analysis was stratified by race and ethnicity due to identified cultural differences in living situation and overall caregiver network composition.

Results: A total of 15,809 caregivers were analyzed. Of those, 3048 (19.2%) managed medications for persons living with dementia. Caregiver networks that manage medications tend to include a spouse or partner and child, at least one of whom has a college degree. Every person with dementia reported at least 1 person who managed their medications. White persons with dementia had an average of 2.4 (range 1-9) people who managed medications, while Black or African American persons with dementia had an average of 2.8 (range 1-9) and Hispanic or Latino persons with dementia had an average of 2.9 (range 1-8) people who managed medications. Spouses were most likely to manage medications across all racial and ethnic groups. In regression modeling, female gender (predicted probability [PP] 15%, 95% CI 13%-17%; P<.001), Black or African American race (PP 7%, 95% CI 4%-10%; P<.001), and Hispanic ethnicity (PP 4%, 95% CI 1%-9%; P=.04) were associated with an increased probability of helping with medications.

Conclusions: The size and composition of caregiver networks that manage medications for persons living with dementia differ by race and ethnicity but typically includes at least 2 people, one of whom has a college degree. Helping with medications was more likely among non-White family caregivers, while White patients with dementia were more likely to use paid help to manage medications.