Claiming normal: Disability, stigma, and relationality in Amman.

IF 2 2区社会学 Q1 ANTHROPOLOGY

Medical Anthropology Quarterly Pub Date : 2025-05-26 DOI:10.1111/maq.70003

Christine Sargent

引用次数: 0

Abstract

Drawing on the experiences of mothers raising children with Down syndrome in Amman, Jordan, this article approaches disability stigma as a phenomenon that attached to meaningful relations of kinship and community. These same relations, however, enabled mothers, children, spouses, relatives, and other disability advocates to (re)claim Down syndrome as normal. In doing so, they challenged extant narratives that treated embodied difference as a relational risk in need of containment. "Normal" possesses disciplinary and oppressive capacities, but it can also become an effective tool. Claiming "normal" helped some families situate Down syndrome as an unexceptional way of being in the world and a valuable mode of being in relations with others.

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声称正常：安曼的残疾、耻辱和关系。

根据约旦安曼养育唐氏综合症儿童的母亲的经验，本文将残疾耻辱感视为一种依附于有意义的亲属关系和社区关系的现象。然而，这些相同的关系使母亲、孩子、配偶、亲属和其他残疾倡导者（重新）声称唐氏综合症是正常的。在这样做的过程中，他们挑战了将体现差异视为需要遏制的关系风险的现存叙述。“正常”具有规训和压迫的能力，但它也可以成为有效的工具。声称“正常”帮助一些家庭将唐氏综合症定位为一种普通的生活方式，也是一种有价值的人际关系模式。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Medical Anthropology Quarterly Multiple-

CiteScore

4.20

自引率

4.50%

发文量

期刊介绍： Medical Anthropology Quarterly: International Journal for the Analysis of Health publishes research and theory in the field of medical anthropology. This broad field views all inquiries into health and disease in human individuals and populations from the holistic and cross-cultural perspective distinctive of anthropology as a discipline -- that is, with an awareness of species" biological, cultural, linguistic, and historical uniformity and variation. It encompasses studies of ethnomedicine, epidemiology, maternal and child health, population, nutrition, human development in relation to health and disease, health-care providers and services, public health, health policy, and the language and speech of health and health care.