Personalized Care in Advance Care Planning with Cancer and Chronic Progressive Diseases Using the Go Wish Game.

IF 3 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Sara Alquati, Marta Perin, Simona Sacchi, Ludovica De Panfilis, Silvia Tanzi
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引用次数: 0

Abstract

Background: The Go Wish Game (GWG) is a card game designed to ease Advance Care Planning (ACP) discussions. It helps patients to consider their values and priorities, and to share them with families and healthcare professionals (HPs). Despite a general appreciation of the GWG, mechanisms related to its implementation have been poorly investigated. Objective: to determine optimal strategies for integration of the GWG into clinical practice and to investigate the experiences of a Palliative Care Unit (PCU) trained in the use of the GWG. Methods: We performed a descriptive qualitative study. Data were collected through a focus group (FG) and we followed the thematic analysis. The PCU's team described their experience using the GWG focusing on 15 patients (9 oncological, 6 non-oncological) patients, managed by the PCU. Results: Our data revealed five main themes, along with their subthemes: (1) personalizing the GWG proposal; (2) the role of the caregiver; (3) organizational aspects; (4) meaning of the GWG in clinical practice, and (5) dealing with patient's priorities. Comparison of real-life cases has led to the identification of specific facilitators and barriers that can hinder or promote the use of the GWG for personalized medicine. Conclusions: Findings suggest that certain aspects still require attention in GWG implementation, particularly regarding the training and competencies (communicative, relational, ethical) of the healthcare professionals, and the process leading to the proposal of the GWG to the patient.

使用围棋游戏在癌症和慢性进展性疾病的预先护理计划中的个性化护理。
背景:围棋游戏(GWG)是一种纸牌游戏,旨在简化预先护理计划(ACP)的讨论。它帮助患者考虑他们的价值观和优先事项,并与家人和医疗保健专业人员(hp)分享。尽管普遍赞赏GWG,但对其实施的相关机制调查甚少。目的:确定将GWG纳入临床实践的最佳策略,并调查接受过GWG使用培训的姑息治疗单位(PCU)的经验。方法:采用描述性定性研究。通过焦点小组(FG)收集数据,并进行专题分析。PCU的团队描述了他们使用GWG的经验,重点是由PCU管理的15名患者(9名肿瘤患者,6名非肿瘤患者)。结果:我们的数据揭示了五个主要主题,以及它们的副主题:(1)个性化GWG提案;(2)照顾者的角色;(3)组织方面;(4) GWG在临床实践中的意义;(5)处理患者的优先事项。通过对现实案例的比较,确定了可能阻碍或促进GWG用于个性化医疗的具体促进因素和障碍。结论:研究结果表明,在GWG的实施中,某些方面仍然需要注意,特别是关于医疗保健专业人员的培训和能力(沟通、关系、道德),以及导致向患者提出GWG的过程。
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来源期刊
Journal of Personalized Medicine
Journal of Personalized Medicine Medicine-Medicine (miscellaneous)
CiteScore
4.10
自引率
0.00%
发文量
1878
审稿时长
11 weeks
期刊介绍: Journal of Personalized Medicine (JPM; ISSN 2075-4426) is an international, open access journal aimed at bringing all aspects of personalized medicine to one platform. JPM publishes cutting edge, innovative preclinical and translational scientific research and technologies related to personalized medicine (e.g., pharmacogenomics/proteomics, systems biology). JPM recognizes that personalized medicine—the assessment of genetic, environmental and host factors that cause variability of individuals—is a challenging, transdisciplinary topic that requires discussions from a range of experts. For a comprehensive perspective of personalized medicine, JPM aims to integrate expertise from the molecular and translational sciences, therapeutics and diagnostics, as well as discussions of regulatory, social, ethical and policy aspects. We provide a forum to bring together academic and clinical researchers, biotechnology, diagnostic and pharmaceutical companies, health professionals, regulatory and ethical experts, and government and regulatory authorities.
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