Improving How Healthcare Staff Support the Psychological Well-Being of People Living With Post-Stroke Aphasia: A Co-Created Study

IF 3 3区医学 Q2 HEALTH CARE SCIENCES & SERVICES

Health Expectations Pub Date : 2025-05-28 DOI:10.1111/hex.70303

Sarah Northcott, Amanda Comer, Abi Roper, Lydia Davis, Katerina Hilari

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Abstract

Background and Aims

Aphasia, a language disability, is common following a stroke. People with aphasia are at risk of becoming depressed and isolated, yet due to their communication difficulties, healthcare staff find it challenging to support their emotional well-being. This study aimed to explore what people with aphasia and their families consider important when training healthcare staff to support their psychological well-being post stroke.

Methods

We ran co-design workshops with six stakeholders with lived experience: four people with aphasia and two family members. The content of the workshops was allowed to evolve in a collaborative manner, with an assumed equality between the facilitators and lived experience stakeholders. Workshop material was analysed using Framework Analysis. We then co-produced four films to raise awareness and train healthcare professionals.

Results

Five main themes from the workshops were: (1) interactions with healthcare staff that support psychological well-being (e.g., listening with empathy, seeing patients as people, hope and encouragement, kindness and knowledge of aphasia); (2) interactions with healthcare staff that damage psychological well-being (e.g., feeling told off, being talked about and not included, not feeling listened to, not being supported to communicate and not feeling treated like a human being); (3) experiences of psychological therapy and mental health services; (4) who should provide psychological support and (5) influencing healthcare practice. The four films emphasised the personal journeys of lived experience stakeholders and their accounts of interacting with healthcare staff.

Discussion

Lived experience stakeholders felt strongly that their messages should be heard by all healthcare staff, not just those who elect to go on specialist training courses. They considered that supporting emotional well-being is the responsibility of all staff within stroke care.

Patient or Public Contribution

People with aphasia and family member stakeholders shaped all aspects of this study; outputs were allowed to evolve in response to their priorities. Initially, the researchers had anticipated that the focus would be on specialist training courses in psychological therapy; this shifted to a new focus on influencing how all healthcare staff interact with patients, including both non-clinical staff and staff who would not elect to go on a specialist training course. The co-produced films were a direct result of lived experience stakeholders' suggestions and priorities.

查看原文本刊更多论文

改善医护人员如何支持中风后失语症患者的心理健康：一项共同创建的研究

背景和目的失语症是一种语言障碍，在中风后很常见。失语症患者有变得抑郁和孤立的风险，但由于他们的沟通困难，医护人员发现很难支持他们的情感健康。本研究旨在探讨失语症患者及其家人在培训医护人员以支持他们中风后的心理健康时认为重要的是什么。方法与6名有生活经验的利益相关者（4名失语症患者和2名家庭成员）进行共同设计研讨会。研讨会的内容允许以协作的方式发展，假设促进者和生活经验利益相关者之间是平等的。采用框架分析法对车间物料进行分析。然后，我们联合制作了四部电影，以提高人们的认识并培训医疗保健专业人员。结果研讨会的五个主要主题是：(1)与医护人员的互动，支持心理健康（例如，同情地倾听，将患者视为人，希望和鼓励，善良和了解失语症）；(2)与医护人员的互动会损害心理健康（例如，感觉被责备、被谈论但不被包括在内、感觉不被倾听、在沟通时不被支持、感觉不被当作人对待）；(3)心理治疗和心理卫生服务经历；(4)谁应该提供心理支持；(5)影响医疗实践。这四部电影强调了利益相关者的个人生活经历，以及他们与医护人员互动的经历。生活经验利益相关者强烈认为，他们的信息应该被所有医护人员听到，而不仅仅是那些选择参加专业培训课程的人。他们认为，支持情绪健康是中风护理中所有工作人员的责任。失语症患者和家庭成员利益相关者塑造了本研究的各个方面；允许产出根据其优先事项发展。最初，研究人员预计重点将放在心理治疗的专业培训课程上；这转向了一个新的重点，即影响所有医疗保健工作人员与患者的互动方式，包括非临床工作人员和不愿选择参加专业培训课程的工作人员。联合制作的电影是生活经验的直接结果，利益相关者的建议和优先事项。

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来源期刊

Health Expectations 医学-公共卫生、环境卫生与职业卫生

CiteScore

5.20

自引率

9.40%

发文量

251

审稿时长

>12 weeks

期刊介绍： Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including: • Person-centred care and quality improvement • Patients'' participation in decisions about disease prevention and management • Public perceptions of health services • Citizen involvement in health care policy making and priority-setting • Methods for monitoring and evaluating participation • Empowerment and consumerism • Patients'' role in safety and quality • Patient and public role in health services research • Co-production (researchers working with patients and the public) of research, health care and policy Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.