Communication with children about parental bipolar disorder: a qualitative interview study.

IF 3.5 2区 医学 Q2 PSYCHIATRY
En-Nien Tu, Kate Ea Saunders, Layla Rashid, Louise Dalton, Cathy Creswell
{"title":"Communication with children about parental bipolar disorder: a qualitative interview study.","authors":"En-Nien Tu, Kate Ea Saunders, Layla Rashid, Louise Dalton, Cathy Creswell","doi":"10.1186/s40345-025-00384-9","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>The impacts of parental bipolar disorder (BD) on families and children highlight the need to understand how best to talk to children about their parents' diagnosis, especially as their developmental capacity for understanding grows. This qualitative study aims to explore the strategies, challenges, and support needs of parents in relation to communicating with their children (5-12 years) about BD, in order to inform the development of further interventions and resources.</p><p><strong>Methodology: </strong>Purposive and snowball sampling strategies were used to recruit parents with BD, their partners, and stakeholders who support parents with BD. Recruitment occurred via social media, emails, and community outreach between April 2022 and April 2023. Semi-structured interviews were conducted with 11 parents with BD or non-BD partners and 12 charity workers or mental health professionals. The interview guides explored participants' lived experiences and professional insights into communicating about parental BD with children. Data were analysed using reflexive, inductive, thematic analysis.</p><p><strong>Result: </strong>Participants identified several benefits of sharing parental BD diagnoses with children, including fostering understanding, adaptation, compassion, and strengthening family relationships. However, they also noted challenges such as uncertainty, stigma, and potential distress for children. To make communication effective, participants emphasised the importance of age-appropriate dialogue, addressing children's concerns, providing reassurance, and preparing them for future episodes. They highlighted that transparent, interactive communication, thoughtful timing, and collaboration with family members and professionals are crucial for tailoring the process to each family's unique needs.</p><p><strong>Conclusion: </strong>Our findings underscore the complexities of communicating a parental BD diagnosis to children, highlighting both the potential benefits and challenges. Participants emphasised the need for developing interventions and policies specifically tailored to address the particular communication needs of families impacted by BD.</p>","PeriodicalId":13944,"journal":{"name":"International Journal of Bipolar Disorders","volume":"13 1","pages":"19"},"PeriodicalIF":3.5000,"publicationDate":"2025-05-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12103402/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"International Journal of Bipolar Disorders","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1186/s40345-025-00384-9","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PSYCHIATRY","Score":null,"Total":0}
引用次数: 0

Abstract

Background: The impacts of parental bipolar disorder (BD) on families and children highlight the need to understand how best to talk to children about their parents' diagnosis, especially as their developmental capacity for understanding grows. This qualitative study aims to explore the strategies, challenges, and support needs of parents in relation to communicating with their children (5-12 years) about BD, in order to inform the development of further interventions and resources.

Methodology: Purposive and snowball sampling strategies were used to recruit parents with BD, their partners, and stakeholders who support parents with BD. Recruitment occurred via social media, emails, and community outreach between April 2022 and April 2023. Semi-structured interviews were conducted with 11 parents with BD or non-BD partners and 12 charity workers or mental health professionals. The interview guides explored participants' lived experiences and professional insights into communicating about parental BD with children. Data were analysed using reflexive, inductive, thematic analysis.

Result: Participants identified several benefits of sharing parental BD diagnoses with children, including fostering understanding, adaptation, compassion, and strengthening family relationships. However, they also noted challenges such as uncertainty, stigma, and potential distress for children. To make communication effective, participants emphasised the importance of age-appropriate dialogue, addressing children's concerns, providing reassurance, and preparing them for future episodes. They highlighted that transparent, interactive communication, thoughtful timing, and collaboration with family members and professionals are crucial for tailoring the process to each family's unique needs.

Conclusion: Our findings underscore the complexities of communicating a parental BD diagnosis to children, highlighting both the potential benefits and challenges. Participants emphasised the need for developing interventions and policies specifically tailored to address the particular communication needs of families impacted by BD.

父母双相情感障碍与儿童的沟通:一项质性访谈研究。
背景:父母双相情感障碍(BD)对家庭和儿童的影响突出了了解如何最好地与儿童谈论父母的诊断的必要性,特别是随着他们理解能力的发展。本研究旨在探讨父母在与孩子(5-12岁)沟通双相障碍方面的策略、挑战和支持需求,以便为进一步的干预措施和资源的开发提供信息。方法:采用有目的和滚雪球抽样策略招募患有双相障碍的父母、他们的伴侣和支持双相障碍父母的利益相关者。招募在2022年4月至2023年4月期间通过社交媒体、电子邮件和社区外展进行。对11名患有双相障碍或非双相障碍的父母和12名慈善工作者或心理健康专业人员进行了半结构化访谈。访谈指南探讨了参与者在与孩子沟通父母双相障碍方面的生活经历和专业见解。数据分析采用自反、归纳、专题分析。结果:参与者确定了与孩子分享父母双相障碍诊断的几个好处,包括促进理解、适应、同情和加强家庭关系。然而,他们也指出了诸如不确定性、耻辱和儿童潜在痛苦等挑战。为了使沟通有效,参与者强调了与儿童年龄相适应的对话的重要性,解决了儿童的担忧,提供了安慰,并为他们未来的事件做好了准备。他们强调,透明、互动的沟通、考虑周到的时间安排以及与家庭成员和专业人员的合作,对于根据每个家庭的独特需求量身定制这一过程至关重要。结论:我们的研究结果强调了向儿童传达父母双相障碍诊断的复杂性,强调了潜在的益处和挑战。与会者强调有必要制定专门针对受双相障碍影响的家庭的特殊沟通需要的干预措施和政策。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
International Journal of Bipolar Disorders
International Journal of Bipolar Disorders Medicine-Psychiatry and Mental Health
CiteScore
6.70
自引率
5.00%
发文量
26
审稿时长
13 weeks
期刊介绍: The International Journal of Bipolar Disorders is a peer-reviewed, open access online journal published under the SpringerOpen brand. It publishes contributions from the broad range of clinical, psychological and biological research in bipolar disorders. It is the official journal of the ECNP-ENBREC (European Network of Bipolar Research Expert Centres ) Bipolar Disorders Network, the International Group for the study of Lithium Treated Patients (IGSLi) and the Deutsche Gesellschaft für Bipolare Störungen (DGBS) and invites clinicians and researchers from around the globe to submit original research papers, short research communications, reviews, guidelines, case reports and letters to the editor that help to enhance understanding of bipolar disorders.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信