{"title":"Preparedness, Demand, and Burden of Informal Caregivers of Stroke Survivors From Hospital to Home: A Longitudinal Study Based on Transition Theory.","authors":"Xingxing Ding, Aiyao Wang, Jie Tian, Yun Zhang, Heng Zhang, Yinfeng Dong","doi":"10.1111/phn.13573","DOIUrl":null,"url":null,"abstract":"<p><strong>Objectives: </strong>To investigate the levels, predictors, and relationships between preparedness, demand, and burden among informal caregivers of stroke survivors.</p><p><strong>Design: </strong>Longitudinal study.</p><p><strong>Sample: </strong>One hundred and forty-two informal caregivers of stroke survivors.</p><p><strong>Measurements: </strong>Preparedness, demand, and burden of informal caregivers were assessed at 2 days pre-discharge (T0), 2 weeks post-discharge (T1) and 4 weeks (T2) post-discharge.</p><p><strong>Results: </strong>Caregiver preparedness was lowest and demand and burden were highest at T0. Preparedness increased over time, whereas demand and burden decreased. Preparedness was predicted by caregiver occupation and stroke survivor age, while demand was predicted by caregiver age, education, occupation, and caregiver-stroke survivor relationship. Burden was predicted by the caregiver-stroke survivor relationship. Additionally, caregiver preparedness was significantly negatively correlated with demand, and demand was positively correlated with burden.</p><p><strong>Conclusions: </strong>Informal caregivers had low preparedness, as well as high demand and burden, 2 days before discharge, highlighting the need for tailored nursing interventions to support their transition from hospital to home care.</p><p><strong>Trial registration: </strong>Chinese Clinical Trial Registry (ChiCTR2300076487).</p>","PeriodicalId":54533,"journal":{"name":"Public Health Nursing","volume":" ","pages":"e13573"},"PeriodicalIF":1.7000,"publicationDate":"2025-05-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Public Health Nursing","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1111/phn.13573","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"NURSING","Score":null,"Total":0}
引用次数: 0
Abstract
Objectives: To investigate the levels, predictors, and relationships between preparedness, demand, and burden among informal caregivers of stroke survivors.
Design: Longitudinal study.
Sample: One hundred and forty-two informal caregivers of stroke survivors.
Measurements: Preparedness, demand, and burden of informal caregivers were assessed at 2 days pre-discharge (T0), 2 weeks post-discharge (T1) and 4 weeks (T2) post-discharge.
Results: Caregiver preparedness was lowest and demand and burden were highest at T0. Preparedness increased over time, whereas demand and burden decreased. Preparedness was predicted by caregiver occupation and stroke survivor age, while demand was predicted by caregiver age, education, occupation, and caregiver-stroke survivor relationship. Burden was predicted by the caregiver-stroke survivor relationship. Additionally, caregiver preparedness was significantly negatively correlated with demand, and demand was positively correlated with burden.
Conclusions: Informal caregivers had low preparedness, as well as high demand and burden, 2 days before discharge, highlighting the need for tailored nursing interventions to support their transition from hospital to home care.
Trial registration: Chinese Clinical Trial Registry (ChiCTR2300076487).
期刊介绍:
Public Health Nursing publishes empirical research reports, program evaluations, and case reports focused on populations at risk across the lifespan. The journal also prints articles related to developments in practice, education of public health nurses, theory development, methodological innovations, legal, ethical, and public policy issues in public health, and the history of public health nursing throughout the world. While the primary readership of the Journal is North American, the journal is expanding its mission to address global public health concerns of interest to nurses.