Recruiting underrepresented populations for surveys: the case of people with schizophrenia and coexisting diabetes.

IF 1.5 4区 医学 Q3 PSYCHIATRY
Sabrina Trappaud Rønne, Sidse Marie Arnfred, Peter Haulund Gæde, Bryan Cleal, Rikke Jørgensen
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Abstract

Aim: To describe the challenges and strategies involved in recruiting adults to a cross-sectional survey study on psychosocial health and support, with individuals with schizophrenia and type 2 diabetes as the case.

Materials and methods: This descriptive study tracked the recruitment process for a Danish survey study in a register, systematically synthesising all relevant information. This included details on how eligible patients were identified and invited to the study and their reasons for declining. Two recruitment strategies were employed: (1) Recruitment via mental health professionals in psychiatric outpatient clinics in Region Zealand, and (2) Recruitment via phone calls to eligible patients. Descriptive analyses of the recruitment data were conducted.

Results: Three challenges were identified and described: (1) Challenges in identifying eligible patients, (2) Challenges in having mental health professionals to recruit participants, and (3) Patients' inability to complete the questionnaire. The first two challenges were addressed through practical approaches: (1) Identifying eligible patients via electronic health records and medication types, and (2) Directly inviting patients via phone calls from a member of the research team. No additional initiatives were implemented to address the third challenge. Approximately 15% of all eligible patients declined to participate, indicating a high willingness to participate among the remaining individuals.

Conclusions: Exploring various challenges was crucial for understanding the difficulties in recruiting this population, initiating new approaches to address these challenges, and recognising the high willingness to participate. Greater emphasis should be placed on patients' rights to make their own decisions regarding participation in research.

招募代表性不足的人群进行调查:精神分裂症和糖尿病患者的病例。
目的:描述以精神分裂症和2型糖尿病患者为例,招募成年人进行心理社会健康和支持的横断面调查研究所涉及的挑战和策略。材料和方法:这项描述性研究追踪了丹麦调查研究的招募过程,系统地综合了所有相关信息。这包括如何确定合格患者并邀请他们参加研究以及他们拒绝的原因的细节。采用两种招募策略:(1)通过新西兰地区精神科门诊诊所的精神卫生专业人员招募,(2)通过电话招募符合条件的患者。对招募数据进行描述性分析。结果:发现并描述了三个挑战:(1)识别合格患者的挑战;(2)心理健康专业人员招募参与者的挑战;(3)患者无法完成问卷调查。前两个挑战是通过实际方法解决的:(1)通过电子健康记录和药物类型确定符合条件的患者,以及(2)通过研究团队成员的电话直接邀请患者。没有实施其他举措来应对第三个挑战。所有符合条件的患者中约有15%拒绝参与,这表明其余个体的参与意愿很高。结论:探索各种挑战对于理解招募这些人群的困难、启动解决这些挑战的新方法以及认识到参与的高度意愿至关重要。应该更加强调患者在参与研究方面做出自己决定的权利。
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来源期刊
Nordic Journal of Psychiatry
Nordic Journal of Psychiatry 医学-精神病学
CiteScore
3.60
自引率
5.60%
发文量
86
审稿时长
12 months
期刊介绍: Nordic Journal of Psychiatry publishes international research on all areas of psychiatry. Nordic Journal of Psychiatry is the official journal for the eight psychiatry associations in the Nordic and Baltic countries. The journal aims to provide a leading international forum for high quality research on all themes of psychiatry including: Child psychiatry Adult psychiatry Psychotherapy Pharmacotherapy Social psychiatry Psychosomatic medicine Nordic Journal of Psychiatry accepts original research articles, review articles, brief reports, editorials and letters to the editor.
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