{"title":"The barriers to receiving health care for people with Parkinson’s from predominantly Asian backgrounds in the UK","authors":"Mouhammed Ramadhan, Joshua Stott, Anette Schrag","doi":"10.1038/s41531-025-00946-9","DOIUrl":null,"url":null,"abstract":"<p>Despite universal access to healthcare to eligible people of all ethnic backgrounds in the NHS, disparity in healthcare provision exists. Parkinson’s disease (PD) is a chronic, progressive disorder with an insidious onset and increasing healthcare needs over time. However, there is little information on the experience of healthcare and barriers to access in people from minority ethnic (ME) backgrounds in the UK. Interviews were conducted with 21 People with Parkinson’s (PwP) (38% female, mean age 54 (SD 10.67 years) from ME groups. Results were analysed using Braun and Clarke’s thematic analysis. Four main themes were extracted: Awareness and Acceptance of Symptoms in the ME Community; Socio-cultural Expectations and Impacts; Access to Information on Parkinson’s and Services; and Experiences of Healthcare. ME-PwP experience challenges in accessing healthcare, even in a universal healthcare system. Recognising these complex barriers may improve access and quality of life.</p>","PeriodicalId":19706,"journal":{"name":"NPJ Parkinson's Disease","volume":"21 1","pages":""},"PeriodicalIF":6.7000,"publicationDate":"2025-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"NPJ Parkinson's Disease","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1038/s41531-025-00946-9","RegionNum":1,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"NEUROSCIENCES","Score":null,"Total":0}
引用次数: 0
Abstract
Despite universal access to healthcare to eligible people of all ethnic backgrounds in the NHS, disparity in healthcare provision exists. Parkinson’s disease (PD) is a chronic, progressive disorder with an insidious onset and increasing healthcare needs over time. However, there is little information on the experience of healthcare and barriers to access in people from minority ethnic (ME) backgrounds in the UK. Interviews were conducted with 21 People with Parkinson’s (PwP) (38% female, mean age 54 (SD 10.67 years) from ME groups. Results were analysed using Braun and Clarke’s thematic analysis. Four main themes were extracted: Awareness and Acceptance of Symptoms in the ME Community; Socio-cultural Expectations and Impacts; Access to Information on Parkinson’s and Services; and Experiences of Healthcare. ME-PwP experience challenges in accessing healthcare, even in a universal healthcare system. Recognising these complex barriers may improve access and quality of life.
期刊介绍：
npj Parkinson's Disease is a comprehensive open access journal that covers a wide range of research areas related to Parkinson's disease. It publishes original studies in basic science, translational research, and clinical investigations. The journal is dedicated to advancing our understanding of Parkinson's disease by exploring various aspects such as anatomy, etiology, genetics, cellular and molecular physiology, neurophysiology, epidemiology, and therapeutic development. By providing free and immediate access to the scientific and Parkinson's disease community, npj Parkinson's Disease promotes collaboration and knowledge sharing among researchers and healthcare professionals.
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