Matthew Fernandez, Deb Lees, Katie de Luca, Dawn Dane, Peter Stilwell, Leanda McKenna, Brigitte Tampin, Caroline Bulsara, Tamar Pincus, Michelle Kendell
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引用次数: 0
Abstract
Introduction
Low back pain (LBP) is a highly prevalent and disabling condition. People with LBP may be referred to elective surgical clinics for further evaluation and consideration of surgery. Despite long waits for an initial appointment, many of these patients are not surgical candidates and may be discharged, receiving minimal-to-no care, advice or alternative treatment options, leaving a critical gap in care.
Methods
Approximately 25 participants with dominant, chronic non-specific axial LBP who are (1) referred to and (2) discharged without spinal surgery following consultation in two elective spinal surgery clinics in Western Australia will participate in a one-on-one pre-consultation semi-structured interview and a similar post-consultation qualitative interview. Purposive sampling will be used to recruit participants. Interviews will be audio-recorded and transcribed, underpinned by a qualitative descriptive approach to explore participants' care journey, including pre-consultation expectations and overall experiences post-consultation. We will use inductive content analysis to analyse our data, allowing for the identification of themes that are generated from the participants' responses.
Discussion/Conclusion
This protocol outlines the methodological process for a qualitative study exploring the experiences and expectations of LBP patients before and after consulting in elective spinal surgery clinics in Western Australia. The findings may give rise to consumer-focused solutions to improve the care journey and highlight gaps in patient expectations and understanding of non-surgical management, informing the development of tailored educational resources, communication strategies and new care pathways.
Patient or Public Contribution
This study will incorporate patient and/or public involvement by engaging representatives from Musculoskeletal Australia (https://muscha.org/) to contribute to the study design and interpretation of findings. Specifically, a consumer with lived experience of low back pain will be invited to review and provide feedback on the semi-structured interview questions, to ensure they are appropriate, accessible and reflective of patient experiences.
Clinical Trial Registration
This study is not a clinical trial and is therefore not registered.
期刊介绍:
Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including:
• Person-centred care and quality improvement
• Patients'' participation in decisions about disease prevention and management
• Public perceptions of health services
• Citizen involvement in health care policy making and priority-setting
• Methods for monitoring and evaluating participation
• Empowerment and consumerism
• Patients'' role in safety and quality
• Patient and public role in health services research
• Co-production (researchers working with patients and the public) of research, health care and policy
Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.