Development and initial validation of the health-related quality of life pictorial inventory for children (HEALTH-PIC).

IF 3.3 3区医学 Q1 HEALTH CARE SCIENCES & SERVICES

Quality of Life Research Pub Date : 2025-05-15 DOI:10.1007/s11136-025-03988-x

Tracy C W Tang, Mun Wong, Jian-Bin Li, Derwin K C Chan

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引用次数: 0

Abstract

Purpose: This 3-study paper aimed to develop and validate a self-reported Health-Related Quality of Life Pictorial Inventory for Early Childhood Children (HEALTH-PIC). The scale was designed to overcome existing barriers of parent-proxy response styles such as observation bias and offer an alternative to age-suited literary questionnaires to assess self-reported health-related quality of life, including physical health, emotional health, social health and school health in early childhood.

Methods: Each study targeted a specific aspect of scale development, employing distinct samples to refine and validate the inventory. Study 1 involved item development/revision, which utilized a panel of 10 experts (Mean_age = 34.8, SD = 4.9) and 25 parents (Mean_age = 38.9; SD = 4.1) via the Delphi method to revise the scale and establish agreement. Study 2 is a cross-sectional study that invited a sample of 22 primary school students (Mean_age = 6.18, SD = 0.39) and 20 kindergarten students (Mean_age = 4.55, SD = 0.50) to establish face validity amongst primary respondents. Finally, Study 3 is a cross-sectional study that invited 342 parent and child (Mean_age = 6.30, SD = 1.31) dyads to complete the HEALTH-PIC and reference health-related quality of life (HRQoL) questionnaires to establish the questionnaire's factorial, concurrent, discriminant and criterion validity in addition to internal consistency.

Results: Scale items in Study 1 were developed alongside experts and parents with a strong theoretical and statistical support calculated using Aiken's agreement (Aiken's V p < 0.05), ensuring that the items were clear, accurate and applicable for children. In Study 2, we ensured that primary respondents of different ages were able to accurately identify the pictorial images (Aiken's V p < 0.05) and complete the questionnaire when the scripted instructions were read aloud. In Study 3, structural equation modelling of the HEALTH-PIC demonstrated a robust factor structure (CFI and TLI > 0.99; RMSEA and SRMR ≤ 0.08), concurrent validity, discriminant validity, criterion validity and an acceptable level of internal consistency (i.e., Cronbach's α = 0.60-0.66).

Conclusion: The findings of the three studies provide preliminary evidence to support the content validity and construct validity of the HEALTH-PIC. This novel pictorial scale not only provides a reliable and valid assessment of the multidimensional aspects of health-related quality of life among children but can also overcome existing barriers of parent-proxy or age-suited questionnaires.

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儿童健康相关生活质量图片清单（HEALTH-PIC）的开发和初步验证。

目的：本研究旨在开发和验证幼儿健康相关生活质量图像量表（HEALTH-PIC）。该量表旨在克服现有的父母代理反应方式的障碍，如观察偏差，并提供适合年龄的文学问卷的替代方案，以评估自我报告的健康相关生活质量，包括幼儿期的身体健康、情感健康、社会健康和学校健康。方法：每项研究针对量表开发的一个特定方面，采用不同的样本来完善和验证清单。研究1涉及项目开发/修订，使用了一个由10名专家（平均= 34.8,SD = 4.9）和25名家长(平均= 38.9；SD = 4.1)，通过德尔菲法修正量表，建立一致性。研究2是一项横断面研究，邀请了22名小学生（mean = 6.18, SD = 0.39）和20名幼儿园学生（mean = 4.55, SD = 0.50）来建立初级被调查者的面孔效度。最后，研究3是一项横断面研究，邀请342对父母和子女（mean = 6.30, SD = 1.31）完成健康相关生活质量问卷（HEALTH-PIC）和参考健康相关生活质量问卷（HRQoL），以建立问卷的析因效度、并发效度、判别效度和标准效度以及内部一致性。结果：研究1中的量表项目是与专家和家长一起开发的，具有很强的理论和统计支持，使用Aiken协议(Aiken's V p 0.99；RMSEA和SRMR≤0.08)，并发效度，区别效度，标准效度和可接受的内部一致性水平（即Cronbach's α = 0.60-0.66）。结论：三项研究结果为健康pic的内容效度和结构效度提供了初步证据。这种新颖的图像量表不仅对儿童与健康有关的生活质量的多维方面提供了可靠和有效的评估，而且还可以克服父母代理或适合年龄的问卷调查的现有障碍。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Quality of Life Research 医学-公共卫生、环境卫生与职业卫生

CiteScore

6.50

自引率

8.60%

发文量

224

审稿时长

3-8 weeks

期刊介绍： Quality of Life Research is an international, multidisciplinary journal devoted to the rapid communication of original research, theoretical articles and methodological reports related to the field of quality of life, in all the health sciences. The journal also offers editorials, literature, book and software reviews, correspondence and abstracts of conferences. Quality of life has become a prominent issue in biometry, philosophy, social science, clinical medicine, health services and outcomes research. The journal''s scope reflects the wide application of quality of life assessment and research in the biological and social sciences. All original work is subject to peer review for originality, scientific quality and relevance to a broad readership. This is an official journal of the International Society of Quality of Life Research.