Challenges in studying disparities in neuropsychiatric hyperkinetic movement disorders.

Abstract

Purpose of review: The purpose of this review is to highlight challenges in studying disparities in neuropsychiatric hyperkinetic movement disorders, specifically Tourette syndrome and Huntington's disease.

Recent findings: We highlight racial and ethnic disparities in understudied movement disorders, particularly the neuropsychiatric hyperkinetic movement disorders, Tourette syndrome and Huntington's disease. These diagnoses are likely under-recognized and under-diagnosed in racial and ethnic minority groups, leading to disparities in access to subspecialty care and treatment. Factors contributing to disparities are complex and likely include patient mistrust of the medical community, stigma, and structural racism. Application of health disparities research frameworks used in other disciplines may have utility in the study of inequities in neurology.

Summary: There are significant challenges in studying disparities in Tourette syndrome and Huntington's disease. We also highlight frameworks used in neurology as well as recommendations from the National Institute of Neurological Disorders and Stroke around training in health disparities and recommendations in reducing disparities in neurological disorders across the life span.