Digital health tools in juvenile idiopathic arthritis: a systematic literature review.

IF 2.8 3区 医学 Q1 PEDIATRICS
Jordi Anton, María Montoro, Estíbaliz Loza, Teresa Otón, Susan Ramirez, Diego Benavent
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引用次数: 0

Abstract

Background: Nowadays, digital health technologies, including mobile apps, wearable technologies, social media, websites, electronic medical records, and artificial intelligence, are impacting disease management and outcomes. We aimed to analyse the characteristics and use of digital health tools in juvenile idiopathic arthritis (JIA).

Methods: We conducted a systematic review (SR) to identify articles examining the characteristics, use, and outcomes (feasibility, usability, and effectiveness) of digital health tools in JIA patients. A sensitive search strategy was performed in Medline, Embase, and Cochrane databases until December 2022 (later updated to March 2024). Two reviewers independently selected the studies and collected the data, including study quality. A descriptive analysis was performed.

Results: A total of 21 studies were included, one SR, six randomised controlled trials, four observational studies, four validation studies, one discovery and verification study, and five qualitative studies. Study quality was generally moderate. Most studies focused on patients with JIA (especially young people), but also on parents and health care professionals. Different digital health technologies were investigated, like websites, mobile apps, wearables, and telemedicine. The main objectives of the tools were self-management, symptom and quality of life monitoring, physical activity tracking, disease knowledge improvement, and medication monitoring. Different themes and contents were usually included in the same digital health tool, such as psychological health, lifestyle, intimacy, or shared decision-making. Tool development and validation processes were poorly or not at all described, and data regarding regulatory compliance, security, or privacy were scarce.

Conclusions: There is significant variability in the type, characteristics, objectives, and contents of digital health tools for JIA. They still show limitations and gaps, thus highlighting the need for better critical assessment and reporting.

青少年特发性关节炎的数字健康工具:系统的文献综述。
背景:如今,数字卫生技术,包括移动应用程序、可穿戴技术、社交媒体、网站、电子病历和人工智能,正在影响疾病管理和结果。我们的目的是分析青少年特发性关节炎(JIA)的特点和数字健康工具的使用。方法:我们进行了一项系统综述(SR),以识别研究JIA患者数字健康工具的特征、使用和结果(可行性、可用性和有效性)的文章。在Medline、Embase和Cochrane数据库中执行敏感搜索策略,直到2022年12月(后来更新到2024年3月)。两名审稿人独立选择研究并收集数据,包括研究质量。进行描述性分析。结果:共纳入21项研究,1项SR研究、6项随机对照试验、4项观察性研究、4项验证性研究、1项发现与验证性研究和5项定性研究。研究质量一般为中等。大多数研究集中于JIA患者(尤其是年轻人),但也有父母和卫生保健专业人员。调查了不同的数字健康技术,如网站、移动应用程序、可穿戴设备和远程医疗。这些工具的主要目标是自我管理、症状和生活质量监测、身体活动跟踪、疾病知识改善和药物监测。不同的主题和内容通常包含在同一个数字健康工具中,如心理健康、生活方式、亲密关系或共同决策。工具开发和验证过程很差,或者根本没有描述,并且关于法规遵从性、安全性或隐私的数据很少。结论:JIA数字健康工具的类型、特征、目标和内容存在显著差异。它们仍然显示出局限性和差距,因此强调需要更好地进行批判性评估和报告。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Pediatric Rheumatology
Pediatric Rheumatology PEDIATRICS-RHEUMATOLOGY
CiteScore
4.10
自引率
8.00%
发文量
95
审稿时长
>12 weeks
期刊介绍: Pediatric Rheumatology is an open access, peer-reviewed, online journal encompassing all aspects of clinical and basic research related to pediatric rheumatology and allied subjects. The journal’s scope of diseases and syndromes include musculoskeletal pain syndromes, rheumatic fever and post-streptococcal syndromes, juvenile idiopathic arthritis, systemic lupus erythematosus, juvenile dermatomyositis, local and systemic scleroderma, Kawasaki disease, Henoch-Schonlein purpura and other vasculitides, sarcoidosis, inherited musculoskeletal syndromes, autoinflammatory syndromes, and others.
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