Compromised Agency in the Subjective Experiences of Temporal Distortions Among Institutionalized Alzheimer's Patients in China: A Qualitative Study.

IF 2.6 2区医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE

Qualitative Health Research Pub Date : 2025-04-13 DOI:10.1177/10497323251329764

Genying Su, Jianxin Ding, Yan Xu

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Abstract

Temporal distortions in Alzheimer's disease (AD) patients have been extensively studied from neuroanatomical and empirical perspectives. However, the subjective experiences of these temporal disturbances are relatively under-researched. This study, using inductive content analysis, explored the lived experiences of temporal distortions among AD patients in two integrated clinical and elderly care centers in China. Seventeen participants were involved in the study. Three key themes emerged regarding Chinese institutionalized AD patients' experiences of temporal distortions: limited agency in temporal orientation of the present, futile agency in mental time travel to the past, and relinquished agency in the imagination and planning of the future. The study identifies institutional and cultural factors as potential contributing influences. The scheduled institutional routines can constrain AD patients' sense of agency over temporal perceptions. Expectations derived from the Chinese cultural principle of filial piety might also contribute to the participants' relinquishment of agency.

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中国住院阿尔茨海默病患者时间扭曲主观体验中的妥协代理：一项定性研究。

阿尔茨海默病（AD）患者的时间扭曲已经从神经解剖学和经验的角度进行了广泛的研究。然而，对这些时间干扰的主观体验的研究相对较少。本研究采用归纳内容分析的方法，探讨了中国两家综合临床和老年护理中心AD患者的时间扭曲生活经历。17名参与者参与了这项研究。关于中国制度化AD患者的时间扭曲经历，出现了三个关键主题：当前时间取向的有限代理，到过去的精神时间旅行的无用代理，以及对未来的想象和规划的放弃代理。该研究确定了制度和文化因素是潜在的影响因素。预定的机构常规可以限制AD患者的代理感，而不是时间感知。来自中国文化孝道原则的期望也可能有助于参与者放弃代理权。

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来源期刊

Qualitative Health Research Multiple-

CiteScore

6.80

自引率

6.20%

发文量

109

期刊介绍： QUALITATIVE HEALTH RESEARCH is an international, interdisciplinary, refereed journal for the enhancement of health care and to further the development and understanding of qualitative research methods in health care settings. We welcome manuscripts in the following areas: the description and analysis of the illness experience, health and health-seeking behaviors, the experiences of caregivers, the sociocultural organization of health care, health care policy, and related topics. We also seek critical reviews and commentaries addressing conceptual, theoretical, methodological, and ethical issues pertaining to qualitative enquiry.