Proposing a multi-method phenomenological approach in exploring the perceived daily life experiences of people with dementia in their dementia care environments and immediate outdoor settings.

Frontiers in dementia Pub Date : 2025-03-31 eCollection Date: 2025-01-01 DOI:10.3389/frdem.2025.1502911
Alexia Mercieca, Iain Scott, Catharine Ward Thompson, Heather Wilkinson
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Abstract

The environment in this study is presented primarily drawing on the theoretical definition of home, and its experience and meaning to the individual with dementia, with an interest in access to outdoors. Notions of perception, cognitive image and affordance are central to the sense of home, and in turn the sense of self that this may inform and support. This theoretical framework informs the multi-method phenomenological approach proposed, through themes of spatial legibility, cultural appropriateness, fascination, user-centredness and personalisation. The novelty of the methodological toolkit lies in the incorporation of methods that have been traditionally used in research with people with dementia as the basis of the framework, but which are supplemented by additional layers developed from conventional architectural tools to create a more visual representation of the environmental experience. Despite its apparent complexity, the methodology yields a very clear and precise image of the person's presence in her surroundings, at once providing a location in space and time, her mood and engagement, as well as a layering of the affordances that may have informed her behavior. This method was developed as part of this research, and remains unique to it. Its innovation lies in the progression of the DCM tool, the integration of the notion of affordances and architectural mapping techniques to propose a holistic depiction of the care experience of people with dementia.

提出一种多方法现象学方法来探索痴呆症患者在痴呆症护理环境和直接户外环境中的感知日常生活体验。
本研究中的环境主要是根据家的理论定义,以及它对痴呆症患者的体验和意义,他们对户外活动感兴趣。感知、认知形象和认知能力的概念是家的核心,反过来,这可能会通知和支持的自我意识。这一理论框架通过空间易读性、文化适宜性、魅力、以用户为中心和个性化等主题,为提出的多方法现象学方法提供了信息。方法论工具包的新颖之处在于,它结合了传统上用于研究痴呆症患者的方法,作为框架的基础,但它辅以传统建筑工具开发的额外层,以创造更直观的环境体验。尽管它看起来很复杂,但这种方法产生了一个非常清晰和精确的人物在周围环境中的形象,同时提供了空间和时间上的位置,她的情绪和参与,以及可能影响她行为的可见性的分层。这种方法是作为这项研究的一部分而开发的,并且仍然是独一无二的。它的创新之处在于DCM工具的进步、功能支持概念和建筑映射技术的整合,以提出对痴呆症患者护理体验的整体描述。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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