A roadmap towards Ireland's membership of BBMRI-ERIC.

HRB open research Pub Date : 2025-05-29 eCollection Date: 2025-01-01 DOI:10.12688/hrbopenres.14089.1
Amina Arar, Heidi Annuk, Sean O Hynes, Emma Snapes, Michael Kerin, Sonja Khan, Nicola Miller
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引用次数: 0

Abstract

Background: BioBANC Symposium has become a key forum for the Irish biobanking community. The third annual event focused on networking and quality, featuring a workshop to explore the role and value of networked biobanking for Ireland. The Director General of BBMRI-ERIC advanced these discussions by addressing an audience of interdisciplinary experts, high-level stakeholders, and policymakers from the Irish biobanking community, as well as representatives from the Health Research Charities Ireland (HRCI), the National Clinical Trials Office (NCTO), the European Clinical Research Infrastructure Network (ECRIN-ERIC) research infrastructure, and the Department of Health.

Methods: A panel discussion brought together an array of experts from patient advocacy, clinical trials, pharmaceutical industry, government, healthcare policy and BBMRI-ERIC representation to explore the integration of Ireland into the BBMRI-ERIC network. This diverse panel discussed strategies to enhance Ireland's biobanking capabilities and leverage international collaborations. Themes explored included the benefits, gaps and changes needed if Ireland was to consider membership of BBMRI-ERIC. VEVOX live polling was used to gauge audience views and questions on posed topics, enabling interactive audience participation and capturing real-time feedback to enrich the discussion.

Results: Substantial benefits that BBMRI-ERIC membership would bring for Ireland were highlighted, including enhanced infrastructure, standardised practices, and greater economic opportunities. Attendees also delved into how Ireland could address current gaps and align its biobanking operations with broader European standards. The discussion identified several critical themes and recommendations to address the need for funding, legislative support, education, public engagement, and strategic planning.

Conclusion: This article aims to encapsulate the discussions and outcomes of BioBANC Symposium III, focusing on the strategic moves Ireland must consider harnessing the full potential of its biobanking community. It serves not just as a record of proceedings but as a guide for action, urging stakeholders at all levels to collaborate towards a unified goal.

爱尔兰加入BBMRI-ERIC的路线图。
背景:BioBANC研讨会已成为爱尔兰生物银行界的重要论坛。第三届年度活动侧重于网络和质量,设有研讨会,探讨爱尔兰网络生物银行的作用和价值。BBMRI-ERIC总干事通过向来自爱尔兰生物银行界的跨学科专家、高层利益相关者和决策者以及来自爱尔兰卫生研究慈善机构(HRCI)、国家临床试验办公室(NCTO)、欧洲临床研究基础设施网络(ECRIN-ERIC)研究基础设施和卫生部的代表发表讲话,推动了这些讨论。方法:小组讨论汇集了一系列来自患者倡导,临床试验,制药行业,政府,医疗保健政策和BBMRI-ERIC代表的专家,探讨爱尔兰融入BBMRI-ERIC网络。这个多样化的小组讨论了加强爱尔兰生物银行能力和利用国际合作的战略。探讨的主题包括爱尔兰考虑加入BBMRI-ERIC所需的好处、差距和变化。VEVOX现场投票用于评估观众对所提出主题的看法和问题,使观众能够互动参与并获取实时反馈以丰富讨论。结果:BBMRI-ERIC成员资格将为爱尔兰带来实质性的好处,包括加强基础设施、标准化做法和更大的经济机会。与会者还深入探讨了爱尔兰如何解决目前的差距,并使其生物银行业务与更广泛的欧洲标准保持一致。讨论确定了几个关键主题和建议,以解决资金、立法支持、教育、公众参与和战略规划方面的需求。结论:本文旨在概括BioBANC研讨会III的讨论和成果,重点关注爱尔兰必须考虑利用其生物银行社区的全部潜力的战略举措。它不仅是会议记录,而且是行动指南,敦促各级利益攸关方为实现统一目标而合作。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
2.40
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0.00%
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6 weeks
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