Developing a Transition Tool for Young Adults With Neurodevelopmental Conditions

IF 1.6 4区医学 Q2 PEDIATRICS

Journal of paediatrics and child health Pub Date : 2025-04-10 DOI:10.1111/jpc.70054

Yattheesh Thanalingam, Fiona Catherine Langridge, Jin Russell, Anita Johansen, Rachel Howlett, Colette Muir

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引用次数: 0

Abstract

Background

Transition from paediatric to adult healthcare is a challenging time for young adults with neurodevelopmental conditions (NDC). The fragmentation and deficits in health, social and disability systems, and the increasing numbers of people with NDC, mean a more guided transition focusing on health independence is needed. This study aimed to develop a holistic transition tool and identify areas for improvement in transition services based on the consensus of experts involved with the care of children with NDC in Aotearoa, New Zealand.

Methods

Utilising the Delphi method, two rounds (Round One: open-ended, Round Two: Likert scale) of online questionnaires involving 61 panellists (healthcare professionals, educators and caregivers) reviewed areas for improvement in transition services and ideas for a transition tool.

Results

In Round One, Delphi participants identified seven themes related to transition services, including processes, resources, professionals, governance and culture; and 10 themes related to components of the tool, including communication, healthcare management, rights, activities, supports and community connectedness, whānau/family, culture, mental and spiritual health and sexual health. In Round Two, 94% of the ideas for transition services items reached consensus (26% with strong consensus [> 95%]). All the components of the transition tool reached consensus, and 62% of items reached strong consensus (> 95%).

Conclusion

This study provides direction on key domains related to transition services and a framework for a transition tool for young adults with NDC in Aotearoa, New Zealand. Its inclusion of domains related to culture, mental and spiritual health, rights for young adults, family involvement and community connectedness is a first step in developing a holistic approach to support a successful transition.

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为患有神经发育疾病的年轻人开发一种过渡工具。

背景：从儿科过渡到成人医疗保健是一个具有挑战性的时间，年轻的成年人神经发育状况（NDC）。卫生、社会和残疾系统的碎片化和缺陷，以及患有自主贡献的人数不断增加，意味着需要进行以卫生独立为重点的更有指导的过渡。本研究旨在开发一个整体的过渡工具，并根据新西兰奥特罗阿参与照顾NDC儿童的专家的共识，确定过渡服务的改进领域。方法：利用德尔菲法，两轮在线问卷（第一轮：开放式问卷，第二轮：李克特量表），涉及61名小组成员（医疗保健专业人员、教育工作者和护理人员），审查了过渡服务的改进领域和过渡工具的想法。结果：在第一轮中，德尔福参与者确定了与转型服务相关的七个主题，包括流程、资源、专业人员、治理和文化；与该工具组成部分相关的10个主题，包括通信、保健管理、权利、活动、支持和社区联系、whānau/家庭、文化、心理和精神健康以及性健康。在第二轮中，94%的关于过渡服务项目的想法达成了共识（26%达成了强烈共识[> 95%]）。过渡工具的所有组成部分达成了共识，62%的项目达成了强烈共识（bbb95 %）。结论：本研究为新西兰奥特罗阿的NDC年轻人提供了与过渡服务相关的关键领域和过渡工具框架。它纳入了与文化、心理和精神健康、青年权利、家庭参与和社区联系有关的领域，这是制定支持成功过渡的整体办法的第一步。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of paediatrics and child health 医学-小儿科

CiteScore

2.90

自引率

5.90%

发文量

487

审稿时长

3-6 weeks

期刊介绍： The Journal of Paediatrics and Child Health publishes original research articles of scientific excellence in paediatrics and child health. Research Articles, Case Reports and Letters to the Editor are published, together with invited Reviews, Annotations, Editorial Comments and manuscripts of educational interest.