{"title":"Listening and learning: the need for a compassionate and patient-centered approach for longstanding AN.","authors":"Jennifer L Gaudiani","doi":"10.1186/s40337-025-01279-x","DOIUrl":null,"url":null,"abstract":"<p><p>A 2022 paper proposing preliminary clinical characteristics of adults with anorexia nervosa who might be supported in compassionate end-of-life care generated public dissent in the peer-reviewed literature and the media as well as private expressions of support. Several years of listening and learning by the lead author resulted in a greater understanding of personal, clinical, and scholarly concerns that arose as a result of this article. In this piece, the lead author expressly disavows the concept and phrase of \"terminal anorexia nervosa.\" This essay attempts to acknowledge the original article's inadequacies, aims to bring clarity and specificity to the issue, and calls for ongoing discussions and collaboration to improve treatment for our complex and vulnerable patients.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":"13 1","pages":"81"},"PeriodicalIF":3.5000,"publicationDate":"2025-05-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12070718/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Eating Disorders","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1186/s40337-025-01279-x","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"NUTRITION & DIETETICS","Score":null,"Total":0}
引用次数: 0
Abstract
A 2022 paper proposing preliminary clinical characteristics of adults with anorexia nervosa who might be supported in compassionate end-of-life care generated public dissent in the peer-reviewed literature and the media as well as private expressions of support. Several years of listening and learning by the lead author resulted in a greater understanding of personal, clinical, and scholarly concerns that arose as a result of this article. In this piece, the lead author expressly disavows the concept and phrase of "terminal anorexia nervosa." This essay attempts to acknowledge the original article's inadequacies, aims to bring clarity and specificity to the issue, and calls for ongoing discussions and collaboration to improve treatment for our complex and vulnerable patients.
期刊介绍：
Journal of Eating Disorders is the first open access, peer-reviewed journal publishing leading research in the science and clinical practice of eating disorders. It disseminates research that provides answers to the important issues and key challenges in the field of eating disorders and to facilitate translation of evidence into practice.
The journal publishes research on all aspects of eating disorders namely their epidemiology, nature, determinants, neurobiology, prevention, treatment and outcomes. The scope includes, but is not limited to anorexia nervosa, bulimia nervosa, binge eating disorder and other eating disorders. Related areas such as important co-morbidities, obesity, body image, appetite, food and eating are also included. Articles about research methodology and assessment are welcomed where they advance the field of eating disorders.
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