Perspectives of Former Caregivers of Black Older Adults Living With Dementia on Advance Care Planning.

IF 1.1 4区医学 Q4 GERIATRICS & GERONTOLOGY

Journal of gerontological nursing Pub Date : 2025-06-01 Epub Date: 2025-04-24 DOI:10.3928/00989134-20250417-01

Emika S Miller, Celia E Wills, Kimberly S Wilson-Lawson, Mary Beth Happ, Alai Tan, Todd B Monroe, Karen O Moss

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引用次数: 0

Abstract

Purpose: To describe the perspectives of lower socioeconomic status (SES) former family caregivers of Black persons living with dementia (PLWD) on advance care planning needs and preferences for their care recipients.

Method: Semi-structured interviews were completed with 17 lower SES former family caregivers of Black PLWD. Basic qualitative description was used for these analyses.

Results: Four major themes were identified: (1) Improvements Needed for Caregiver Education, (2) Caregiver Support Needs During and After Caregiving, (3) Obstacles Faced During Caregiving, and (4) Need for Restored Identity Following Care Recipient Death. Former family caregivers also expressed a desire to support current caregivers.

Conclusion: Findings fill a critical gap in the literature by highlighting challenges faced during and after caregiving. Future research should leverage perspectives of former caregivers to assist with improving outcomes for Black caregivers, thereby promoting health equity. [Journal of Gerontological Nursing, 51(6), 30-37.].

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黑人老年痴呆症患者的前照顾者对提前护理计划的看法。

目的：探讨低社会经济地位（SES）的黑人痴呆症患者的前家庭照顾者对其被照顾者的提前护理计划需求和偏好的看法。方法：采用半结构化访谈法对17名社会经济地位较低的黑人残障家庭照顾者进行访谈。这些分析使用了基本的定性描述。结果：确定了四个主要主题：(1)护理者教育的改进需求，(2)护理期间和之后的护理者支持需求，(3)护理过程中面临的障碍，以及(4)护理者死亡后恢复身份的需求。以前的家庭照顾者也表达了支持现在的照顾者的愿望。结论：研究结果通过突出护理期间和之后面临的挑战填补了文献中的关键空白。未来的研究应利用前护理人员的观点，以帮助改善黑人护理人员的结果，从而促进健康公平。老年护理杂志，xx(xx), xx-xx。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of gerontological nursing 医学-护理

CiteScore

2.00

自引率

7.70%

发文量

审稿时长

6-12 weeks

期刊介绍： The Journal of Gerontological Nursing is a monthly, peer-reviewed journal publishing clinically relevant original articles on the practice of gerontological nursing across the continuum of care in a variety of health care settings, for more than 40 years.