Real-World Views of Patching Differ to Health Professionals': An Online Survey of Professionals, Patients, Teachers, Parents and Carers.

Q3 Medicine
British and Irish Orthoptic Journal Pub Date : 2025-04-29 eCollection Date: 2025-01-01 DOI:10.22599/bioj.404
Daniel Osborne, Maddison McGowen, Jeremy Bradshaw, Helen Ellis, Megan Evans, James Stallwood, Joerg Fliege, Jay Self
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引用次数: 0

Abstract

Background: Patching therapy is the most common treatment for amblyopia (lazy eye) and is unsuccessful for approximately 40% of patients, leaving them with life-long unilateral visual impairment and increased risk of bilateral visual impairment later in life. Poor adherence to patching therapy is a major contributing factor in treatment failure yet we lack real-world understanding as to why this is a problem outside of controlled research studies.

Methods: In collaboration with patient contributors, we developed an online survey for past patients, parents/carers of children with amblyopia, health professionals, and schoolteachers. The survey included questions about when and where is best for children to wear the patch, the design of the patch, and facilitators and barriers to patching therapy.

Results: We received 631 responses to the survey (259 health professionals, 213 parents/carers, 110 people who patched as a child, 7 teachers, and 42 people matched to multiple categories). Healthcare professionals thought weekday (54.4% versus 14.3% preferring weekend and 31.3% no difference) and school (54.4% versus 21.6% preferred home and 23.9% no difference) patching was more successful. Past patients (52.4%) favoured 'force' as a technique to encourage patching; more than both health professionals (7.7%) and parents or carers (19.7%). Patients rated 'people making fun' of them as an important barrier to patching.

Conclusions: We describe surprising differences in stakeholders' responses to the survey questions about barriers to successful patching treatment. We suggest these differences are used as a guide for further work to explore stakeholder's social experience of patching.

现实世界对打补丁的看法与卫生专业人员不同:一项对专业人员、患者、教师、家长和护理人员的在线调查。
背景:补片治疗是治疗弱视最常见的方法,约40%的患者不成功,使他们终生单侧视力受损,并增加了以后生活中双侧视力受损的风险。治疗失败的一个主要原因是对修补疗法的依从性差,但我们缺乏现实世界的理解,为什么这是一个受控研究之外的问题。方法:我们与患者合作,对过去的患者、弱视儿童的父母/照顾者、卫生专业人员和学校教师进行了在线调查。调查的问题包括:何时何地最适合儿童佩戴贴片,贴片的设计,以及贴片治疗的促进因素和障碍。结果:我们收到了631份调查回复(259名卫生专业人员,213名家长/照顾者,110名儿童,7名教师,42名多类别匹配者)。医疗保健专业人员认为工作日(54.4%对14.3%,31.3%没有差异)和学校(54.4%对21.6%,23.9%没有差异)修补更成功。既往患者(52.4%)倾向于“用力”作为鼓励补片的技术;超过卫生专业人员(7.7%)和父母或照顾者(19.7%)。患者认为,“有人在取笑”他们,这是他们修复补丁的一个重要障碍。结论:我们描述了利益相关者对成功修补治疗障碍的调查问题的反应的惊人差异。我们建议将这些差异作为进一步工作的指南,以探索利益相关者的社会补丁体验。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
British and Irish Orthoptic Journal
British and Irish Orthoptic Journal Health Professions-Optometry
CiteScore
1.50
自引率
0.00%
发文量
13
审稿时长
18 weeks
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