A survey of long-term NICU developmental follow-up practices in gastroschisis patients.

IF 2.4 3区医学 Q2 OBSTETRICS & GYNECOLOGY

Journal of Perinatology Pub Date : 2025-04-11 DOI:10.1038/s41372-025-02300-6

Maddie R Rundell, Lauren E Miller, Barbara B Warner, Amy J Wagner

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引用次数: 0

Abstract

Objective: To (1) elucidate current practices of NICU developmental follow-up (NDFU) programs for gastroschisis (GS) patients, (2) identify potential gaps in knowledge and care, and (3) identify future directions for research and clinical care.

Study design: An online survey was distributed to academic centers caring for GS patients who also participate in the Gastroschisis Outcomes of Delivery (GOOD) Study to evaluate practices of NDFU programs.

Results: There was an 89% response rate, with 18 centers participating. Sixty-one percent of NDFU programs did not routinely follow GS patients. The remaining 39% had variable guidelines for follow-up. Eligibility criteria, frequency of visits, gestational age cutoff for inclusion, and duration of follow-up were all inconsistent.

Conclusion: Many NDFU programs do not routinely follow GS patients despite previous literature demonstrating they are at potentially elevated risk for worse developmental outcomes. Substantial variability in NDFU practice patterns demonstrates the need for quality long-term data.

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胃裂患者长期新生儿重症监护病房发展随访实践调查。

目的：(1)阐明胃裂（GS）患者NICU发育随访（NDFU）计划的现状，(2)确定知识和护理方面的潜在差距，(3)确定未来的研究和临床护理方向。研究设计：对参与胃裂分娩结局研究（GOOD）的GS患者的学术中心进行在线调查，以评估NDFU项目的实践。结果：有效率89%，18个中心参与。61%的NDFU项目没有常规跟踪GS患者。其余39%的患者有不同的随访指南。入选标准、就诊频率、入组的胎龄截止时间和随访时间均不一致。结论：许多NDFU项目没有常规跟踪GS患者，尽管先前的文献表明他们有潜在的更高风险，导致更糟糕的发育结果。NDFU实践模式的大量变化表明需要高质量的长期数据。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Perinatology 医学-妇产科学

CiteScore

5.40

自引率

6.90%

发文量

284

审稿时长

3-8 weeks

期刊介绍： The Journal of Perinatology provides members of the perinatal/neonatal healthcare team with original information pertinent to improving maternal/fetal and neonatal care. We publish peer-reviewed clinical research articles, state-of-the art reviews, comments, quality improvement reports, and letters to the editor. Articles published in the Journal of Perinatology embrace the full scope of the specialty, including clinical, professional, political, administrative and educational aspects. The Journal also explores legal and ethical issues, neonatal technology and product development. The Journal’s audience includes all those that participate in perinatal/neonatal care, including, but not limited to neonatologists, perinatologists, perinatal epidemiologists, pediatricians and pediatric subspecialists, surgeons, neonatal and perinatal nurses, respiratory therapists, pharmacists, social workers, dieticians, speech and hearing experts, other allied health professionals, as well as subspecialists who participate in patient care including radiologists, laboratory medicine and pathologists.