Preparedness, Uncertainty, and Distress Among Family Caregivers in the Care of Patients Undergoing Hematopoietic Stem Cell Transplantation.

IF 1.6 4区医学 Q2 NURSING

Oncology nursing forum Pub Date : 2025-04-23 DOI:10.1188/25.ONF.217-227

Ali Karimi-Rozveh, Elahe Nasrollahi Bishe, Tayeb Mohammadi, Mohammad Vaezi, Leila Sayadi

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引用次数: 0

Abstract

Objectives: To determine the level of preparedness, uncertainty, and distress of family caregivers (FCs) of patients before and after hematopoietic stem cell transplantation.

Sample & setting: This study is a longitudinal cohort panel study involving 69 FCs of patients undergoing hematopoietic stem cell transplantation.

Methods & variables: Data were collected during the first week of hospitalization (T0) and two weeks after discharge (T1) via FCs' demographic information, a clinical status form for patients, two scales, and a psychological distress instrument. IBM SPSS Statistics, version 16.0, was used for data analysis.

Results: The mean preparedness among FCs decreased significantly at T1 compared to T0. In addition, the uncertainty experienced by FCs was significantly higher at T0 than at T1.

Implications for nursing: Assessing the readiness of FCs and providing them with psychological and supportive interventions before patients are discharged is crucial for ensuring better care of patients undergoing hematopoietic stem cell transplantation. Nurses must offer comprehensive information to FCs about patients' diagnosis, treatment, and care protocol to minimize uncertainty.

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在接受造血干细胞移植患者的护理中，家庭照顾者的准备、不确定性和痛苦。

目的：确定患者造血干细胞移植前后家庭照顾者的准备程度、不确定性和痛苦程度。样本和环境：本研究是一项纵向队列研究，涉及69例接受造血干细胞移植的fc患者。方法与变量：在住院第一周（T0）和出院后两周（T1），通过FCs的人口统计信息、患者临床状态表、两份量表和心理困扰量表收集数据。使用IBM SPSS Statistics 16.0版本进行数据分析。结果：与T0相比，FCs的平均准备程度在T1时显著降低。此外，FCs在T0时经历的不确定性显著高于T1。对护理的影响：在患者出院前评估造血干细胞患者的准备情况，并为他们提供心理和支持性干预措施，对于确保接受造血干细胞移植的患者得到更好的护理至关重要。护士必须向fc提供有关患者诊断、治疗和护理方案的全面信息，以尽量减少不确定性。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Oncology nursing forum 医学-护理

CiteScore

3.20

自引率

0.00%

发文量

审稿时长

>12 weeks

期刊介绍： The mission of the Oncology Nursing Forum, an official publication of ONS, is to Convey research information related to practice, technology, education, and leadership. Disseminate oncology nursing research and evidence-based practice to enhance transdisciplinary quality cancer care. Stimulate discussion of critical issues relevant to oncology nursing.