Intersectionality in Caregiving for Autism: A Discourse Analysis of Lived Experiences from Academic Literature.

IF 2 4区 医学 Q3 CLINICAL NEUROLOGY
Nudurupati Venkata Tejo Prasanna, Monalisa Nayak
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引用次数: 0

Abstract

Caregiving for individuals with autism spectrum disorder is a complex and deeply personal experience shaped by intersecting identities and diverse social realities. This study explores the unique narratives of caregivers of autism spectrum disorder through a discourse analysis of academic literature. Using keyword search and purposive sampling, 11 articles are chosen for analysis. The results highlight the need to recognize caregiving for autism spectrum disorder as a distinct and valuable act rather than a secondary or assumed responsibility. Findings reveal that cultural norms, socioeconomic conditions, and systemic inequities significantly influence caregivers' experiences. This study underscores the need for a more inclusive and equitable framework that acknowledges the unique challenges faced by autism spectrum disorder families, ultimately fostering a comprehensive and culturally sensitive support system.

自闭症照护的交叉性:来自学术文献的生活经验话语分析。
照顾自闭症谱系障碍患者是一项复杂而深刻的个人经历,受到相互交织的身份和不同的社会现实的影响。本研究透过学术文献的话语分析,探讨自闭症谱系障碍照顾者的独特叙述。采用关键词搜索和目的性抽样的方法,选取了11篇文章进行分析。研究结果强调,有必要认识到照顾自闭症谱系障碍是一种独特而有价值的行为,而不是次要的或承担的责任。研究结果表明,文化规范、社会经济条件和系统性不平等显著影响照顾者的经历。这项研究强调需要一个更加包容和公平的框架,承认自闭症谱系障碍家庭面临的独特挑战,最终建立一个全面和文化敏感的支持系统。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of Child Neurology
Journal of Child Neurology 医学-临床神经学
CiteScore
4.20
自引率
5.30%
发文量
111
审稿时长
3-6 weeks
期刊介绍: The Journal of Child Neurology (JCN) embraces peer-reviewed clinical and investigative studies from a wide-variety of neuroscience disciplines. Focusing on the needs of neurologic patients from birth to age 18 years, JCN covers topics ranging from assessment of new and changing therapies and procedures; diagnosis, evaluation, and management of neurologic, neuropsychiatric, and neurodevelopmental disorders; and pathophysiology of central nervous system diseases.
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