{"title":"Intersectionality in Caregiving for Autism: A Discourse Analysis of Lived Experiences from Academic Literature.","authors":"Nudurupati Venkata Tejo Prasanna, Monalisa Nayak","doi":"10.1177/08830738251334205","DOIUrl":null,"url":null,"abstract":"<p><p>Caregiving for individuals with autism spectrum disorder is a complex and deeply personal experience shaped by intersecting identities and diverse social realities. This study explores the unique narratives of caregivers of autism spectrum disorder through a discourse analysis of academic literature. Using keyword search and purposive sampling, 11 articles are chosen for analysis. The results highlight the need to recognize caregiving for autism spectrum disorder as a distinct and valuable act rather than a secondary or assumed responsibility. Findings reveal that cultural norms, socioeconomic conditions, and systemic inequities significantly influence caregivers' experiences. This study underscores the need for a more inclusive and equitable framework that acknowledges the unique challenges faced by autism spectrum disorder families, ultimately fostering a comprehensive and culturally sensitive support system.</p>","PeriodicalId":15319,"journal":{"name":"Journal of Child Neurology","volume":" ","pages":"8830738251334205"},"PeriodicalIF":2.0000,"publicationDate":"2025-04-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Child Neurology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/08830738251334205","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"CLINICAL NEUROLOGY","Score":null,"Total":0}
引用次数: 0
Abstract
Caregiving for individuals with autism spectrum disorder is a complex and deeply personal experience shaped by intersecting identities and diverse social realities. This study explores the unique narratives of caregivers of autism spectrum disorder through a discourse analysis of academic literature. Using keyword search and purposive sampling, 11 articles are chosen for analysis. The results highlight the need to recognize caregiving for autism spectrum disorder as a distinct and valuable act rather than a secondary or assumed responsibility. Findings reveal that cultural norms, socioeconomic conditions, and systemic inequities significantly influence caregivers' experiences. This study underscores the need for a more inclusive and equitable framework that acknowledges the unique challenges faced by autism spectrum disorder families, ultimately fostering a comprehensive and culturally sensitive support system.
期刊介绍:
The Journal of Child Neurology (JCN) embraces peer-reviewed clinical and investigative studies from a wide-variety of neuroscience disciplines. Focusing on the needs of neurologic patients from birth to age 18 years, JCN covers topics ranging from assessment of new and changing therapies and procedures; diagnosis, evaluation, and management of neurologic, neuropsychiatric, and neurodevelopmental disorders; and pathophysiology of central nervous system diseases.