Khushbu F Patel, Madeleine B McGwin, Mary D Slavin, Kate E Surette, Jeffrey C Schneider, Michael J Murphy, Frederick J Stoddard, Lewis E Kazis, Colleen M Ryan
{"title":"Development for the Teen-Aged Life Impact Burn Recovery Evaluation (TA-LIBRE12-19) Profile.","authors":"Khushbu F Patel, Madeleine B McGwin, Mary D Slavin, Kate E Surette, Jeffrey C Schneider, Michael J Murphy, Frederick J Stoddard, Lewis E Kazis, Colleen M Ryan","doi":"10.1093/jbcr/iraf058","DOIUrl":null,"url":null,"abstract":"<p><p>Advances in clinical burn management have led to emphasis on using assessments in clinics. Outcome measures are important to assess the effectiveness of interventions, and support integration back into the community. A more granular measure with advanced psychometrics capability using computer adaptive tests (CAT)) is needed. The current study developed a conceptual model as the first step in creating a new measurement tool for teen burn survivors aged 12 to 19 years, inclusively. To identify outcomes important in assessment of burn recovery, focus groups of clinicians, teens, and their parents were conducted until thematic saturation was reached. Each focus group transcript was analyzed using deductive and inductive approaches to identify and categorize content. Findings were used to validate the model and ensure adequate domain coverage. The TA-LIBRE12-19 conceptual model includes Activity (Mobility, Physical Self-care, General Tasks, Experience of Self, and Learning and Applying Knowledge) and Participation (Major Life Areas, Interpersonal Interactions and Relationships, and Engagement). Eighteen participants completed the study. Clinician's median age was 47 years, (90% female and 80% white); teens' median age was 14 years (62% female and 75% white). Burn size ranged from 0.25 - 60% total body surface area. Focus group content was coded a total of 1,138 times during the analysis. Outcome areas most impacted include Experience of Self, Interpersonal Interactions and Relationships, and Symptoms (372, 282, and 112 codes respectively). A well informed credible conceptual model was developed with a solid foundation of domains consisting of Activity and Participation.</p>","PeriodicalId":15205,"journal":{"name":"Journal of Burn Care & Research","volume":" ","pages":""},"PeriodicalIF":1.5000,"publicationDate":"2025-04-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Burn Care & Research","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1093/jbcr/iraf058","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"CRITICAL CARE MEDICINE","Score":null,"Total":0}
引用次数: 0
Abstract
Advances in clinical burn management have led to emphasis on using assessments in clinics. Outcome measures are important to assess the effectiveness of interventions, and support integration back into the community. A more granular measure with advanced psychometrics capability using computer adaptive tests (CAT)) is needed. The current study developed a conceptual model as the first step in creating a new measurement tool for teen burn survivors aged 12 to 19 years, inclusively. To identify outcomes important in assessment of burn recovery, focus groups of clinicians, teens, and their parents were conducted until thematic saturation was reached. Each focus group transcript was analyzed using deductive and inductive approaches to identify and categorize content. Findings were used to validate the model and ensure adequate domain coverage. The TA-LIBRE12-19 conceptual model includes Activity (Mobility, Physical Self-care, General Tasks, Experience of Self, and Learning and Applying Knowledge) and Participation (Major Life Areas, Interpersonal Interactions and Relationships, and Engagement). Eighteen participants completed the study. Clinician's median age was 47 years, (90% female and 80% white); teens' median age was 14 years (62% female and 75% white). Burn size ranged from 0.25 - 60% total body surface area. Focus group content was coded a total of 1,138 times during the analysis. Outcome areas most impacted include Experience of Self, Interpersonal Interactions and Relationships, and Symptoms (372, 282, and 112 codes respectively). A well informed credible conceptual model was developed with a solid foundation of domains consisting of Activity and Participation.
期刊介绍:
Journal of Burn Care & Research provides the latest information on advances in burn prevention, research, education, delivery of acute care, and research to all members of the burn care team. As the official publication of the American Burn Association, this is the only U.S. journal devoted exclusively to the treatment and research of patients with burns. Original, peer-reviewed articles present the latest information on surgical procedures, acute care, reconstruction, burn prevention, and research and education. Other topics include physical therapy/occupational therapy, nutrition, current events in the evolving healthcare debate, and reports on the newest computer software for diagnostics and treatment. The Journal serves all burn care specialists, from physicians, nurses, and physical and occupational therapists to psychologists, counselors, and researchers.