The development and utilization of a diversity advisory board in an intervention to support social skill development for autistic transition-aged youth.
Ed-Dee G Williams, Matthew J Smith, Jamie Mitchell, Ty B Tucker, Connie Sung, Kari Sherwood, Sarah Dababnah, Sandy Magaña, Temple Lovelace, Shanna K Kattari, Dale Olsen, Jeff Elkins, Laura Humm, Chris Steacy, Edwina Riddle, Caleb Liggett
{"title":"The development and utilization of a diversity advisory board in an intervention to support social skill development for autistic transition-aged youth.","authors":"Ed-Dee G Williams, Matthew J Smith, Jamie Mitchell, Ty B Tucker, Connie Sung, Kari Sherwood, Sarah Dababnah, Sandy Magaña, Temple Lovelace, Shanna K Kattari, Dale Olsen, Jeff Elkins, Laura Humm, Chris Steacy, Edwina Riddle, Caleb Liggett","doi":"10.1177/13623613251330847","DOIUrl":null,"url":null,"abstract":"<p><p>Recent discourse has identified significant issues surrounding the lack of diversity in autism-related research. However, recent efforts have called for the regular use of diversity advisory boards (DAB) in autism-related research to improve the inclusivity of underrepresented and marginalized groups included in the growing autism scholarship. This article outlines the development and implementation of a DAB to support the design and evaluation of an innovative intervention, <i>WorkChat: A Virtual Workday.</i> Specifically, <i>WorkChat</i> focuses on improving knowledge and practicing conversational skills with virtual customers, coworkers, and supervisors to support workplace interactions for autistic transition-age youth. Here, we share guidelines for developing, utilizing, and maintaining a DAB, as well as recommended practices and future implications for implementing DABs in autism services research while using the <i>WorkChat</i> DAB as a case study. The goal is to support the further use of DABs as a means of significantly improving the inclusion of underrepresented and marginalized identities including racial, gender, and sexual minorities, and individuals with disabilities in autism services research.Lay AbstractAutism research often does not include enough people with different identities such as different races, genders, and sexualities. Sometimes, support for autistic individuals does not help everyone equally. They often work better for white, straight autistic males. This article will talk about how we are trying to make autism research more diverse. We will share how we are using a group of diverse advisors to help with research. We will also talk about how to use these advisor groups in the future for autism research.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"13623613251330847"},"PeriodicalIF":5.2000,"publicationDate":"2025-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Autism","FirstCategoryId":"102","ListUrlMain":"https://doi.org/10.1177/13623613251330847","RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"PSYCHOLOGY, DEVELOPMENTAL","Score":null,"Total":0}
引用次数: 0
Abstract
Recent discourse has identified significant issues surrounding the lack of diversity in autism-related research. However, recent efforts have called for the regular use of diversity advisory boards (DAB) in autism-related research to improve the inclusivity of underrepresented and marginalized groups included in the growing autism scholarship. This article outlines the development and implementation of a DAB to support the design and evaluation of an innovative intervention, WorkChat: A Virtual Workday. Specifically, WorkChat focuses on improving knowledge and practicing conversational skills with virtual customers, coworkers, and supervisors to support workplace interactions for autistic transition-age youth. Here, we share guidelines for developing, utilizing, and maintaining a DAB, as well as recommended practices and future implications for implementing DABs in autism services research while using the WorkChat DAB as a case study. The goal is to support the further use of DABs as a means of significantly improving the inclusion of underrepresented and marginalized identities including racial, gender, and sexual minorities, and individuals with disabilities in autism services research.Lay AbstractAutism research often does not include enough people with different identities such as different races, genders, and sexualities. Sometimes, support for autistic individuals does not help everyone equally. They often work better for white, straight autistic males. This article will talk about how we are trying to make autism research more diverse. We will share how we are using a group of diverse advisors to help with research. We will also talk about how to use these advisor groups in the future for autism research.
最近的讨论已经确定了围绕自闭症相关研究缺乏多样性的重大问题。然而,最近的努力呼吁在自闭症相关研究中定期使用多样性咨询委员会(DAB),以提高在日益增长的自闭症奖学金中代表性不足和边缘化群体的包容性。本文概述了DAB的开发和实施,以支持创新干预措施WorkChat: a Virtual Workday的设计和评估。具体来说,WorkChat专注于提高知识和练习与虚拟客户、同事和主管的对话技巧,以支持自闭症过渡年龄青年的工作场所互动。在这里,我们分享了开发、利用和维护DAB的指南,以及在自闭症服务研究中实施DAB的推荐做法和未来的影响,同时使用WorkChat DAB作为案例研究。目标是支持进一步使用DABs作为一种手段,显著改善在自闭症服务研究中纳入代表性不足和边缘化的身份,包括种族、性别和性少数群体以及残疾个体。自闭症研究通常没有包括足够多的不同身份的人,比如不同的种族、性别和性取向。有时候,对自闭症患者的支持并不能平等地帮助每个人。它们通常对白人直男自闭症患者效果更好。这篇文章将讨论我们如何努力使自闭症研究更加多样化。我们将分享我们如何使用一组不同的顾问来帮助研究。我们还将讨论如何在未来的自闭症研究中使用这些顾问小组。
期刊介绍:
Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.