How do Japanese Patients with Chronic Heart Failure View Their Disease, Self-care, and Support?

IF 3.4 3区 医学 Q2 MEDICINE, RESEARCH & EXPERIMENTAL
Shoko Nagata, Kosuke Shiki, Nobutaka Yagi, Naoki Sato
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引用次数: 0

Abstract

Introduction: Chronic heart failure (HF) is a progressive disease with increasing prevalence in Japan. Adherence to lifestyle modifications is important to prevent disease progression and to improve outcomes. An accumulation of insufficient self-care behaviors is an independent risk factor of hospitalization for HF and/or cardiac death; however, there is a lack of self-care awareness in patients with chronic HF. This study aims to increase the understanding of self-care behavior of people living with chronic HF in Japan.

Methods: This non-interventional, cross-sectional study used an explanatory sequential design in mixed methods research with a quantitative and consecutive qualitative phase. In the quantitative research phase, an anonymous online survey questionnaire was distributed to 262 people and completed by 162 participants. In the qualitative phase, 15 participants who had completed the quantitative phase were selected using stratified random sampling from the survey participants and took part in a semi-structured interview. Endpoints included participant demographics and HF characteristics, physical and emotional burdens associated with HF, knowledge of disease, self-care, and treatment support in daily life.

Results: In the quantitative study, 61.5% of participants were male, and 68.9% were ≥ 60 years old. In the qualitative study, 80.0% were male and 46.7% were ≥ 70 years old. Participants experienced physical and emotional burden due to their HF symptoms with > 60% finding brisk walking, and > 40% finding going up stairs to the second floor, burdensome or very burdensome, and approximately 70% experiencing some emotional burden. In general, participants trusted their physicians' instructions around self-care and had a high level of self-care adherence. Participants would like more information regarding HF treatment (68.0%), diet and nutrition (57.3%), and daily lifestyle tips to reduce HF burden (57.3%).

Conclusion: This study highlights the importance of patient education, and the need for multidisciplinary support for patients with chronic HF.

Trial registration: UMIN000047055, March 1, 2022 and UMIN000049065, September 29, 2022.

日本慢性心力衰竭患者如何看待他们的疾病、自我护理和支持?
慢性心力衰竭(HF)是一种进行性疾病,在日本的患病率越来越高。坚持改变生活方式对于预防疾病进展和改善预后非常重要。自我护理行为不足的积累是心衰住院和/或心源性死亡的独立危险因素;然而,慢性心衰患者缺乏自我保健意识。本研究旨在增进对日本慢性心力衰竭患者自我照护行为的了解。方法:本研究采用非干预性横断面研究,在混合方法研究中采用解释序列设计,包括定量和连续定性阶段。在定量研究阶段,向262人发放了一份匿名在线调查问卷,由162人完成。在定性阶段,采用分层随机抽样的方法,从调查对象中选取完成定量阶段的15名参与者,进行半结构化访谈。终点包括参与者的人口统计学特征和心衰特征、与心衰相关的身体和情绪负担、疾病知识、自我保健和日常生活中的治疗支持。结果:在定量研究中,61.5%的参与者为男性,68.9%的参与者年龄≥60岁。在定性研究中,80.0%为男性,46.7%年龄≥70岁。由于心衰症状,参与者经历了身体和情绪上的负担,bbb60 %的人发现快走,> 40%的人发现上楼到二楼是负担或非常负担,大约70%的人经历了一些情绪负担。总的来说,参与者信任医生关于自我保健的指示,并且有很高的自我保健依从性。参与者希望获得更多关于HF治疗(68.0%)、饮食和营养(57.3%)以及减少HF负担的日常生活方式提示(57.3%)的信息。结论:本研究强调了患者教育的重要性,以及对慢性心衰患者多学科支持的必要性。试验注册:UMIN000047055, 2022年3月1日;UMIN000049065, 2022年9月29日。
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来源期刊
Advances in Therapy
Advances in Therapy 医学-药学
CiteScore
7.20
自引率
2.60%
发文量
353
审稿时长
6-12 weeks
期刊介绍: Advances in Therapy is an international, peer reviewed, rapid-publication (peer review in 2 weeks, published 3–4 weeks from acceptance) journal dedicated to the publication of high-quality clinical (all phases), observational, real-world, and health outcomes research around the discovery, development, and use of therapeutics and interventions (including devices) across all therapeutic areas. Studies relating to diagnostics and diagnosis, pharmacoeconomics, public health, epidemiology, quality of life, and patient care, management, and education are also encouraged. The journal is of interest to a broad audience of healthcare professionals and publishes original research, reviews, communications and letters. The journal is read by a global audience and receives submissions from all over the world. Advances in Therapy will consider all scientifically sound research be it positive, confirmatory or negative data. Submissions are welcomed whether they relate to an international and/or a country-specific audience, something that is crucially important when researchers are trying to target more specific patient populations. This inclusive approach allows the journal to assist in the dissemination of all scientifically and ethically sound research.
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