Dementia caregiving in India: New evidence from a National representative sample

IF 13 1区医学 Q1 CLINICAL NEUROLOGY

Alzheimer's & Dementia Pub Date : 2025-05-15 DOI:10.1002/alz.70266

Marco Angrisani, Nicholas S. Reed, Joyita Banerjee, Jinkook Lee

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引用次数: 0

Abstract

INTRODUCTION

As India's population ages, the prevalence of dementia is increasing rapidly, inducing higher need for informal caregivers for a complex population. However, the effects of individuals' cognitive impairment on their caregivers' well-being in India have not been well studied.

METHODS

We analyzed data from 4196 informants of participants in the Longitudinal Aging Study in India-Diagnostic Assessment of Dementia (LASI-DAD). Informants' caregiving roles and well-being, including stress, mental health, positive affect, and spirituality, were assessed alongside the cognitive function and dementia status of LASI-DAD respondents.

RESULTS

Informants of individuals with cognitive impairment experienced significantly higher stress, poorer mental health, and lower levels of positive affect and spirituality. Greater caregiving responsibility intensified the negative impact on well-being.

DISCUSSION

These results demonstrate the significant emotional and psychological strain on dementia caregivers in India, underscoring the need for targeted interventions and support structures.

Highlights

We used a dual data collection approach in LASI-DAD to create a first-of-its-kind linked dataset on care recipients' and caregivers' outcomes, representative of Indian older adults.
Using this dataset, we tested whether cognitive impairment in care recipients increased informants' stress and lowers well-being, with greater caregiving responsibility amplifying these effects.
Informants of cognitively impaired individuals reported significantly higher stress, poorer mental health, and lower positive affect and spirituality, with stronger effects for those with greater caregiving roles.
Non-primary caregivers also experienced well-being declines when assisting a cognitively impaired older adult, likely driven by family disruptions and added household responsibilities for co-residents and logistical challenges and reduced control for those living separately.
Our findings highlight the widespread emotional and psychological strain of dementia caregiving in India, emphasizing the need for targeted support and interventions.

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印度的痴呆症护理：来自全国代表性样本的新证据

随着印度人口的老龄化，痴呆症的患病率正在迅速增加，导致对复杂人口的非正式护理人员的更高需求。然而，在印度，个人认知障碍对照顾者幸福感的影响还没有得到很好的研究。方法：我们分析了印度纵向老龄化研究中4196名参与者的资料，这些参与者是痴呆诊断评估（LASI-DAD）的参与者。被调查者的照顾角色和幸福感，包括压力、心理健康、积极影响和灵性，与LASI-DAD受访者的认知功能和痴呆状态一起被评估。结果：认知障碍个体的信息者经历了明显更高的压力、更差的心理健康、更低的积极情绪和精神水平。更大的照顾责任加剧了对幸福感的负面影响。这些结果表明，在印度，痴呆症护理人员面临着巨大的情绪和心理压力，强调了有针对性的干预和支持结构的必要性。我们在LASI-DAD中使用了双重数据收集方法，创建了首个关于护理接受者和护理者结果的关联数据集，代表了印度老年人。使用该数据集，我们测试了接受护理者的认知障碍是否会增加信息者的压力并降低幸福感，而更大的护理责任会放大这些影响。认知障碍个体的信息提供者报告了显著更高的压力、更差的心理健康状况、更低的积极情绪和灵性，对那些承担更多照顾角色的人的影响更大。非主要照顾者在帮助认知受损的老年人时，幸福感也会下降，这可能是由于家庭破裂、共同居民的家庭责任增加、后勤挑战以及对分开生活的人的控制减少所致。我们的研究结果强调了印度痴呆症护理中普遍存在的情绪和心理压力，强调了有针对性的支持和干预的必要性。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Alzheimer's & Dementia 医学-临床神经学

CiteScore

14.50

自引率

5.00%

发文量

299

审稿时长

3 months

期刊介绍： Alzheimer's & Dementia is a peer-reviewed journal that aims to bridge knowledge gaps in dementia research by covering the entire spectrum, from basic science to clinical trials to social and behavioral investigations. It provides a platform for rapid communication of new findings and ideas, optimal translation of research into practical applications, increasing knowledge across diverse disciplines for early detection, diagnosis, and intervention, and identifying promising new research directions. In July 2008, Alzheimer's & Dementia was accepted for indexing by MEDLINE, recognizing its scientific merit and contribution to Alzheimer's research.