Neurocutaneous syndromes: a multidisciplinary team approach

Abstract

Neurocutaneous syndromes are rare, genetically derived conditions which show characteristic dermatological and neurological features, the most common being Neurofibromatosis type 1, Tuberous Sclerosis Complex and Sturge Weber syndrome. These conditions are medically complex, often involving a number of bodily systems, but are also often associated with developmental differences. Medical and developmental care often involves a large number of professionals. Maintaining a holistic overview of care and ensuring clear communication between teams are essential to ensure that the needs of the child or young person are met in an appropriate and timely way. In this article, we present an approach to the multidisciplinary care of a child and young person with a neurocutaneous condition, taking into account both medical and developmental needs.