Quality of Life After Augmentation Enterocystoplasty in Children

IF 1.5 4区 医学 Q3 UROLOGY & NEPHROLOGY
Alicia Gómez Sánchez, Lara Merino Mateo, Cristina Tordable Ojeda, Sara M. Proaño Landázuri, Daniel Cabezalí Barbacho, Andrés Gómez Fraile
{"title":"Quality of Life After Augmentation Enterocystoplasty in Children","authors":"Alicia Gómez Sánchez,&nbsp;Lara Merino Mateo,&nbsp;Cristina Tordable Ojeda,&nbsp;Sara M. Proaño Landázuri,&nbsp;Daniel Cabezalí Barbacho,&nbsp;Andrés Gómez Fraile","doi":"10.1111/luts.70014","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Objectives</h3>\n \n <p>To evaluate outcomes following bladder augmentation in children at a specialized third-level center concerning quality of life (QoL), continence status, and sexual function.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>The study population included bladder augmented patients treated over the last 25 years. We established contact with them and emailed an online survey with three validated questionnaires: QoL (EQ-5D-5L), incontinence (ICIQ-SF) and sexual function (FSH/FSM2).</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Twenty-four patients, aged between 9 and 44, answered the questionnaire. Among respondents, 54.2% declared experiencing some problem in one or more of the five evaluated dimensions. The mean EQ-VAS score was 80 out of 100, while the mean EQ-5D-5L index was 0,845 out of 1. Based on the ICIQ-SF questionnaire, 58.3% of patients were classified as incontinent. Regarding the bother scale (0–10), the mean score was 4.7 ± 3. Among the 18 patients old enough to answer the sexual function questionnaire, 11 (61.1%) described a low or nonexistent level of sexual satisfaction. Among the male cluster, the average score on the FSH questionnaire was 10.95 ± 6.78 (scale 2–24), while in the female cohort the average score on the FSM-2 questionnaire was 21.5 ± 9.64 (scale 2–32).</p>\n </section>\n \n <section>\n \n <h3> Conclusions</h3>\n \n <p>Despite the high complication rate and the presence of some degree of incontinence or sexual dysfunction in nearly 60% of patients undergoing bladder augmentation in childhood, our cohort exhibits relatively good QoL scores when compared to those reported for the general population.</p>\n </section>\n </div>","PeriodicalId":18028,"journal":{"name":"LUTS: Lower Urinary Tract Symptoms","volume":"17 3","pages":""},"PeriodicalIF":1.5000,"publicationDate":"2025-05-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"LUTS: Lower Urinary Tract Symptoms","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/luts.70014","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"UROLOGY & NEPHROLOGY","Score":null,"Total":0}
引用次数: 0

Abstract

Objectives

To evaluate outcomes following bladder augmentation in children at a specialized third-level center concerning quality of life (QoL), continence status, and sexual function.

Methods

The study population included bladder augmented patients treated over the last 25 years. We established contact with them and emailed an online survey with three validated questionnaires: QoL (EQ-5D-5L), incontinence (ICIQ-SF) and sexual function (FSH/FSM2).

Results

Twenty-four patients, aged between 9 and 44, answered the questionnaire. Among respondents, 54.2% declared experiencing some problem in one or more of the five evaluated dimensions. The mean EQ-VAS score was 80 out of 100, while the mean EQ-5D-5L index was 0,845 out of 1. Based on the ICIQ-SF questionnaire, 58.3% of patients were classified as incontinent. Regarding the bother scale (0–10), the mean score was 4.7 ± 3. Among the 18 patients old enough to answer the sexual function questionnaire, 11 (61.1%) described a low or nonexistent level of sexual satisfaction. Among the male cluster, the average score on the FSH questionnaire was 10.95 ± 6.78 (scale 2–24), while in the female cohort the average score on the FSM-2 questionnaire was 21.5 ± 9.64 (scale 2–32).

Conclusions

Despite the high complication rate and the presence of some degree of incontinence or sexual dysfunction in nearly 60% of patients undergoing bladder augmentation in childhood, our cohort exhibits relatively good QoL scores when compared to those reported for the general population.

儿童肠囊成形术后的生活质量
目的评价某三级专科中心儿童膀胱增强术后的生活质量(QoL)、尿失禁状况和性功能。方法研究人群包括过去25年接受膀胱扩张治疗的患者。我们与他们建立了联系,并通过电子邮件发送了一份在线调查,其中包含三份有效问卷:生活质量(EQ-5D-5L)、尿失禁(ICIQ-SF)和性功能(FSH/FSM2)。结果24例患者接受问卷调查,年龄9 ~ 44岁。在受访者中,54.2%的人声称在五个评估维度中的一个或多个方面遇到了一些问题。平均EQ-VAS评分为80分(满分为100分),平均EQ-5D-5L指数为0.845分(满分为1分)。根据ICIQ-SF问卷,58.3%的患者被分类为尿失禁。烦扰量表(0 ~ 10分)平均得分为4.7±3分。在18名年龄足以回答性功能问卷的患者中,11名(61.1%)描述了低水平或不存在的性满意度。男性组FSH问卷平均得分为10.95±6.78(量表2-24),女性组FSM-2问卷平均得分为21.5±9.64(量表2-32)。结论:尽管近60%的儿童期膀胱增强术患者存在较高的并发症和一定程度的尿失禁或性功能障碍,但与一般人群相比,我们的队列显示出相对较好的生活质量评分。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
LUTS: Lower Urinary Tract Symptoms
LUTS: Lower Urinary Tract Symptoms UROLOGY & NEPHROLOGY-
CiteScore
3.00
自引率
7.70%
发文量
52
审稿时长
>12 weeks
期刊介绍: LUTS is designed for the timely communication of peer-reviewed studies which provides new clinical and basic science information to physicians and researchers in the field of neurourology, urodynamics and urogynecology. Contributions are reviewed and selected by a group of distinguished referees from around the world, some of whom constitute the journal''s Editorial Board. The journal covers both basic and clinical research on lower urinary tract dysfunctions (LUTD), such as overactive bladder (OAB), detrusor underactivity, benign prostatic hyperplasia (BPH), bladder outlet obstruction (BOO), urinary incontinence, pelvic organ prolapse (POP), painful bladder syndrome (PBS), as well as on other relevant conditions. Case reports are published only if new findings are provided. LUTS is an official journal of the Japanese Continence Society, the Korean Continence Society, and the Taiwanese Continence Society. Submission of papers from all countries are welcome. LUTS has been accepted into Science Citation Index Expanded (SCIE) with a 2011 Impact Factor.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信