Understanding young persons' experiences through healthcare transition. A qualitative study

IF 2.9 2区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Patient Education and Counseling Pub Date : 2025-04-26 DOI:10.1016/j.pec.2025.108798

Natwarin Janssens , Lisa Van Wilder , Karsten Vanden Wyngaert , Ann Van Hecke , Kim Van Hoorenbeeck , Elianne Van Loock , Ellen Dupont , Delphine De Smedt , Eva Goossens

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引用次数: 0

Abstract

Purpose

During adolescence, the care for adolescents and young adults (AYAs) with chronic conditions is expected to transfer from a pediatric to adult setting. Up to 40 % of AYAs experience a disruption in medical care access after their transfer. To mitigate this, a gradual implementation of interventions focusing on positive health behaviors is desirable. Currently, the majority of such interventions are designed for complex disease-specific chronic conditions, focusing primarily on pre-transfer intervention strategies. This study aims to provide an in-depth understanding of AYAs with mild chronic conditions’ experiences throughout the stages of healthcare transition.

Methods

A qualitative study was conducted using semi-structured interviews, complemented by photovoice. Study participants were AYAs, 15–21 years old, diagnosed with asthma, type 1 diabetes, and/or obesity, and were either facing the upcoming transfer or had already experienced the transfer to adult care. Interview and image data were thematically analyzed using NVivo.

Results

A total of 18 AYAs (M_age=18 years) participated and a total of 39 photographs were acquired. Five themes were identified, with transition being an individual process as the overarching theme. Additional themes were: setting the expectations, wanting a voice in transition, trust is key and the importance of a support system.

Conclusion

Healthcare transition experiences are overarching across different chronic conditions. The current study highlights the need for continuity of care in healthcare transition, by providing an overview of insights pre-, peri- and post-transfer. Complementary, photovoice was applied as a participatory method. Overall, healthcare transition cannot be approached as a one size fits all, with AYAs advocating for an individualized transition program, tailored to their needs.

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了解年轻人在医疗保健转型中的经历。定性研究

目的：在青少年时期，对患有慢性疾病的青少年和青壮年（AYAs）的护理预计将从儿科转移到成人环境。高达40% %的未成年人在转院后无法获得医疗服务。为了减轻这种情况，需要逐步实施以积极健康行为为重点的干预措施。目前，大多数此类干预措施是针对复杂的疾病特异性慢性疾病设计的，主要侧重于转移前干预策略。本研究旨在深入了解轻度慢性疾病的aya在整个医疗转型阶段的经历。方法采用半结构化访谈法，辅以影像语音进行定性研究。研究参与者为15-21岁的青少年，诊断为哮喘、1型糖尿病和/或肥胖，要么面临即将到来的转移，要么已经经历了成人护理的转移。使用NVivo对访谈和图像数据进行主题分析。结果18名年龄≥18岁的青少年参与调查，共获取照片39张。确定了五个主题，过渡是一个单独的过程，是压倒一切的主题。其他的主题是：设定期望，在过渡中希望有发言权，信任是关键，以及支持系统的重要性。结论不同慢性疾病患者的医疗转型经历具有普遍性。目前的研究强调需要连续性的护理在医疗保健过渡，通过提供的见解前，期间和转移后的概述。作为补充，光声作为参与式方法被应用。总的来说，医疗保健转型不能一刀切地解决所有问题，asa提倡个性化的过渡计划，根据他们的需求量身定制。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Patient Education and Counseling 医学-公共卫生、环境卫生与职业卫生

CiteScore

5.60

自引率

11.40%

发文量

384

审稿时长

46 days

期刊介绍： Patient Education and Counseling is an interdisciplinary, international journal for patient education and health promotion researchers, managers and clinicians. The journal seeks to explore and elucidate the educational, counseling and communication models in health care. Its aim is to provide a forum for fundamental as well as applied research, and to promote the study of organizational issues involved with the delivery of patient education, counseling, health promotion services and training models in improving communication between providers and patients.