Building a community-centered clinical research center in an underserved New York City neighborhood to enhance access to research, equity, and quality of care.

IF 2.1 Q3 MEDICINE, RESEARCH & EXPERIMENTAL
Journal of Clinical and Translational Science Pub Date : 2025-02-10 eCollection Date: 2025-01-01 DOI:10.1017/cts.2025.23
Amin Yakubov, James Holahan, Aaron Lord, Melanie Jay, Rachel Gross, Celia Engelson, Zariya Alvarez, Miguel Rodriguez, Leomaris Caba Caceres, Michael Reyes, Emily Drum, Xiaoting Xing, Rosario Medina, Shilpa Londhe, Brita Roy, Imad Alsayed, Gabrielle Gold-von Simson, Miriam A Bredella
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引用次数: 0

Abstract

Access to an academic clinical research center (CRC) in health professional shortage areas (HPSA) can help address healthcare disparities and increase research accessibility and enrollment. Here we describe the development of a community-centered CRC in the underserved area of Sunset Park, Brooklyn, New York, centered within a larger academic health network and the evaluation of its outcomes within the first two years. In addition to resources and space, establishment of the CRC required a culturally competent and multilingual team of healthcare professionals and researchers and buy-in from the community. Between 1/2022 and 12/2023, the CRC opened 21 new trials (10 interventional and 11 noninterventional) with greater than 500 participant visits that reflect the racial and ethnic diversity of the community. These participants represent 110 distinct zip codes; 76% of these zip codes are underserved and designated HPSA. 60% self-identified as non-White and 20% identified as Hispanic, with 12 other distinct ethnicities represented. 28% of participants speak 11 languages other than English. Community-based CRCs can be created with sustainable growth to align with the mission of the National Institutes of Health and U.S. Food and Drug Administration to meet the ever-growing clinical, social, and research needs of the communities they serve.

在服务不足的纽约市社区建立一个以社区为中心的临床研究中心,以增加获得研究、公平和护理质量的机会。
访问卫生专业人员短缺地区(HPSA)的学术临床研究中心(CRC)可以帮助解决医疗保健差距问题,并增加研究的可及性和注册人数。在这里,我们描述了在纽约布鲁克林日落公园服务不足地区以社区为中心的CRC的发展,以一个更大的学术健康网络为中心,并在头两年对其结果进行了评估。除了资源和空间之外,建立儿童权利中心还需要一支具有文化能力和多语言能力的医疗保健专业人员和研究人员团队,并需要社区的支持。在2022年1月至2023年12月期间,CRC开展了21项新试验(10项干预性试验和11项非干预性试验),超过500名参与者访问,反映了社区的种族和民族多样性。这些参与者代表110个不同的邮政编码;这些邮政编码中有76%服务不足并被指定为HPSA。60%的人认为自己不是白人,20%的人认为自己是西班牙裔,还有其他12个不同的种族。28%的参与者会说英语以外的11种语言。以社区为基础的中心可以与国家卫生研究院和美国食品和药物管理局的使命保持一致,以满足其所服务的社区不断增长的临床、社会和研究需求。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of Clinical and Translational Science
Journal of Clinical and Translational Science MEDICINE, RESEARCH & EXPERIMENTAL-
CiteScore
2.80
自引率
26.90%
发文量
437
审稿时长
18 weeks
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