Care Burden and Care Needs of Mothers of Children With Autism Spectrum Disorders

IF 1.6 Q2 NURSING

Journal of Child and Adolescent Psychiatric Nursing Pub Date : 2025-04-07 DOI:10.1111/jcap.70014

Kadriye Atar, F. Yasemin Kutlu

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引用次数: 0

Abstract

Purpose

This research was conducted to determine the care burden and care needs of mothers of children with autism spectrum disorder and factors related to these.

Design and Methods

This study employed a cross-sectional study design. The survey consisted of demographic questions as well as two questionnaires assessing care burden and care needs.

Findings

The value obtained from the Zarit Care Burden Scale in the study shows that the care burden of mothers is at the medium level (47.15 ± 11.89). It was determined that variables such as mother's age, education level of the mother, family education/counseling status, and discrimination/exclusion were affected by the burden of care. Expressions related to the care of the child diagnosed with an autism spectrum disorder such as “Encountering negative expressions and behaviors of other people in social settings,” “The society's insufficient knowledge about autism spectrum disorder,” and “My child constantly needs my care” were found to be the top three problems experienced by mothers.

Practice Implications

The information provided by studies on this subject will guide child and adolescent psychiatric nurses in terms of developing the right approaches for individuals with these disorders and their relatives.

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自闭症谱系障碍儿童母亲的照顾负担与照顾需求

目的了解自闭症谱系障碍患儿母亲的照料负担、照料需求及其相关因素。设计与方法本研究采用横断面研究设计。该调查包括人口统计问题以及评估护理负担和护理需求的两份问卷。结果本研究的Zarit照料负担量表显示，母亲的照料负担处于中等水平（47.15±11.89）。结果表明，母亲年龄、母亲受教育程度、家庭教育/咨询状况、歧视/排斥等变量均受照顾负担的影响。“在社交场合遇到其他人的消极表情和行为”、“社会对自闭症谱系障碍的认识不足”、“我的孩子总是需要我的照顾”是母亲们遇到的前三大问题。实践启示这方面的研究提供的信息将指导儿童和青少年精神科护士为患有这些疾病的个体及其亲属制定正确的方法。

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来源期刊

Journal of Child and Adolescent Psychiatric Nursing NURSING-

CiteScore

2.90

自引率

6.70%

发文量

期刊介绍： Journal of Child and Adolescent Psychiatric Nursing (JCAPN) is the only nursing journal to focus exclusively on issues of child and adolescent mental health around the world. As a primary resource for nurses and other healthcare professionals in clinical practice, educator roles, and those conducting research in mental health and psychiatric care, the journal includes peer-reviewed, original articles from a wide range of contributors in a broad variety of settings.