{"title":"The Transition From Family Home to Alternative Living Arrangements: Experiences of Adults With Intellectual Disabilities and Their Family Members","authors":"Ruth Walker, Irene Belperio, Christine Bigby, Ilan Wiesel, Fiona Rillotta, Claire Hutchinson","doi":"10.1111/jar.70047","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Background</h3>\n \n <p>It is well documented that many adults with intellectual disabilities live with ageing parents, often without concrete plans for transitioning to alternative living arrangements. Little is known about transition experiences once they occur. This study explores the experiences of adults with intellectual disabilities and their family members of this transition through a relational lens.</p>\n </section>\n \n <section>\n \n <h3> Method</h3>\n \n <p>Semi-structured interviews were conducted with 25 people: 8 adults with intellectual disabilities, 13 parents, and 4 siblings.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Three themes were constructed from the data: ‘Gaining independence and letting go’, ‘negotiating unfamiliar relationships’ and ‘social inclusion and making new connections.’</p>\n </section>\n \n <section>\n \n <h3> Conclusion</h3>\n \n <p>Adults with intellectual disabilities discussed numerous benefits associated with moving out of the family home, including increased autonomy and opportunities for new relationships. Family members also described benefits of the transition, but some grappled with needing to ‘let go’ whilst at the same time retaining some degree of control over their family members’ lives.</p>\n </section>\n </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 2","pages":""},"PeriodicalIF":2.1000,"publicationDate":"2025-04-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70047","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Applied Research in Intellectual Disabilities","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/jar.70047","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PSYCHOLOGY, EDUCATIONAL","Score":null,"Total":0}
引用次数: 0
Abstract
Background
It is well documented that many adults with intellectual disabilities live with ageing parents, often without concrete plans for transitioning to alternative living arrangements. Little is known about transition experiences once they occur. This study explores the experiences of adults with intellectual disabilities and their family members of this transition through a relational lens.
Method
Semi-structured interviews were conducted with 25 people: 8 adults with intellectual disabilities, 13 parents, and 4 siblings.
Results
Three themes were constructed from the data: ‘Gaining independence and letting go’, ‘negotiating unfamiliar relationships’ and ‘social inclusion and making new connections.’
Conclusion
Adults with intellectual disabilities discussed numerous benefits associated with moving out of the family home, including increased autonomy and opportunities for new relationships. Family members also described benefits of the transition, but some grappled with needing to ‘let go’ whilst at the same time retaining some degree of control over their family members’ lives.
期刊介绍:
JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.