Monica E. Calkins, Megan Jumper, Arielle Ered, Fanghong Dong, Deepak K. Sarpal, Krista K. Baker, Donna J. Bencivengo, Russell L. Margolis, Robert W. Buchanan, Yasmine Boumaiz, Elizabeth Burris, Philip D. Campbell, K. N. Roy Chengappa, Catherine Conroy, Akinyi Cooke, Faith Dickerson, Nyasia Flowers, Mandy Fauble, Richard W. Goldberg, Alexander Harvin, Carolyn Howell, Christian Kelly, Julie Kreyenbuhl, Lan Li, Alicia Lucksted, Jill A. Marsteller, Alexander Moxam, Denise Namowicz, Swati Nayar, Jamie Oko, Jessie Riggs, Arunadevi Saravana, Rachel Scheinberg, William R. Smith, Richard States, Timur Suhail-Sindhu, Jerome Taylor, Crystal L. Vatza, Max Wolcott, Christian G. Kohler, Melanie E. Bennett
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引用次数: 0
Abstract
Aim
Connection Learning Healthcare System, one of the eight hubs of the National Institute of Mental Health funded Early Psychosis Intervention Network, supports uniform data collection, analysis, feedback and infrastructure development to promote a culture of continuous quality improvement across 25 Coordinated Specialty Care programs serving young people experiencing first episode psychosis and their families in Maryland and Pennsylvania. This first report describes the hub and its constituent programs, the approach for developing and implementing a hub-wide core assessment battery harmonised with the national battery, and preliminary program and participant characteristics.
Methods
Our hub developed and implemented a computerised core assessment battery, administered every 6 months and developed an integrated system for managing and analysing data.
Results
Between 1 January 2021 and 27 November 2023, 1059 participants were newly admitted to a hub program. The entire cohort (N = 1381) included newly admitted participants and those already in a program as of 1 January 2021. A total of 1245 complete assessment batteries were collected across all time points from 797 participants, with an additional 1920 partially completed batteries collected from 1319 participants. Data are uploaded to the National Data Coordinating Center, where our hub is the third largest data contributor. Descriptive information on programs and participants is provided.
Conclusions
As part of our learning healthcare system to improve clinical services and outcomes across two states, we have successfully implemented a standardised, computerised core assessment battery of essential characteristics and clinical outcomes. Successes, challenges and recommendations for data collection are provided. This paper will serve as a vital methodological resource for users of the unprecedented Early Psychosis Intervention Network national research database seeking to accelerate and improve early psychosis research.
期刊介绍：
Early Intervention in Psychiatry publishes original research articles and reviews dealing with the early recognition, diagnosis and treatment across the full range of mental and substance use disorders, as well as the underlying epidemiological, biological, psychological and social mechanisms that influence the onset and early course of these disorders. The journal provides comprehensive coverage of early intervention for the full range of psychiatric disorders and mental health problems, including schizophrenia and other psychoses, mood and anxiety disorders, substance use disorders, eating disorders and personality disorders. Papers in any of the following fields are considered: diagnostic issues, psychopathology, clinical epidemiology, biological mechanisms, treatments and other forms of intervention, clinical trials, health services and economic research and mental health policy. Special features are also published, including hypotheses, controversies and snapshots of innovative service models.
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