Sara Guilcher, Lauren Cadel, Amanda Everall, Anita Kaiser, Stephanie Cimino, Rasha El-Kotob, Lisa McCarthy, Colleen O'Connell, Crystal MacKay, James Milligan, Aisha Lofters, Sander Hitzig, Diana Zidarov
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引用次数: 0
Abstract
Objectives
To develop potential items for a patient-reported experience measure related to medication use for adults with mobility limitations.
Design
Mixed methods, concept mapping study.
Setting
General community, Canada.
Participants
Participants were required to: self-identify as having a mobility limitation, take at least one medication recommended by a prescriber in the preceding 3 months, live in the community (ie, not in a long-term care home or acute hospital), live in Canada, be 18 years of age or older, and speak and read English or French. Forty-five individuals participated in this study, who were recruited between June 2022 and July 2023 using purposive and convenience sampling strategies.
Interventions
Not applicable.
Main Outcome Measures
Perspectives on items for a patient-reported experience measure related to medication use for adults with mobility limitations.
Results
Participants generated 694 statements, which were synthesized into 80 unique statements. The final map contained ten clusters: (1) medication-related financial considerations and support; (2) pharmacy-related services and supports; (3) access to medications and medication-related supports; (4) acceptance and stigma around medication use; (5) ability and ease of taking medications; (6) shared decision making and access to medication-related research and information; (7) medication effectiveness, side effects and risks; (8) knowledge, self-awareness and empowerment; (9) accessibility of health care providers; and (10) communication and relationships with health care providers. The most important cluster, rated by participants, was medication-related financial considerations and support.
Conclusions
Understanding what matters to individuals with mobility limitations about their medications will support quality improvement of health care delivery and outcomes for this population.
期刊介绍:
The Archives of Physical Medicine and Rehabilitation publishes original, peer-reviewed research and clinical reports on important trends and developments in physical medicine and rehabilitation and related fields. This international journal brings researchers and clinicians authoritative information on the therapeutic utilization of physical, behavioral and pharmaceutical agents in providing comprehensive care for individuals with chronic illness and disabilities.
Archives began publication in 1920, publishes monthly, and is the official journal of the American Congress of Rehabilitation Medicine. Its papers are cited more often than any other rehabilitation journal.