Co-development of a Toolkit to Improve Medication Self-management for Persons with Spinal Cord Injury: A Concept Mapping Approach 4350

Abstract

Objectives

To explore what content should be included in a medication self-management toolkit for adults with spinal cord injury/dysfunction, as well as considerations for delivery.

Design

Mixed methods, concept mapping study.

Setting

General community across Canada.

Participants

Participants were recruited between October 2022 and October 2023 using purposive and convenience sampling strategies. Participants included 21 adults with spinal cord injury/dysfunction, 12 health care providers, and 11 caregivers from 6 provinces across Canada (Ontario, Alberta, British Columbia, Manitoba, Saskatchewan, Nova Scotia).

Interventions

Not applicable.

Main Outcome Measures

Perspectives on content to include in a medication self-management toolkit and considerations for the delivery of the toolkit.

Results

The final map contained 79 statements, which were organized into 8 clusters: (1) information-sharing and communication; (2) health care provider interactions and involvement; (3) peer and community connections; (4) supports and services for accessing prescription medications and medication information; (5) information on nonprescription medication and medication supplies; (6) safety and lifestyle considerations; (7) general medication information; and (8) practical information and strategies related to medication-taking. All statements were rated highly on importance and feasibility to include in the toolkit. Only 2 statements had a mean rating below neutral (moderate importance or feasibility). Safety and lifestyle considerations was rated as the most important and feasible cluster to include in the toolkit.

Conclusions

In the subsequent phases of this study, the toolkit will be refined through cognitive interviews and a mixed methods pilot evaluation will be conducted to assess the feasibility, acceptability, and appropriateness of the toolkit, as well medication knowledge, self-efficacy, and quality of life. Given the limited tools to help adults with spinal cord injury/dysfunction with managing their medications, there is great potential to better support this population across all areas of medication self-management.

Disclosures

none.