Experiences and coping strategies of parents with children diagnosed with autism spectrum disorder in early care with emphasis on social skills and family cultural values: A qualitative study
Ingrid Zugey Galán-Vera , María Auxiliadora Robles-Bello , Aziz Sarhani-Robles , Nieves Valencia-Naranjo
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引用次数: 0
Abstract
Parents of children diagnosed with autism spectrum disorder (ASD) often experience a grieving process upon receiving the diagnosis. In Spain, early care centers focus on providing care to this population. However, little is known about parents' experiences during this process, the daily challenges they face due to their children's social skills deficits, and how their context and values influence this process. The aim of this study was to explore and describe the experiences of parents of children diagnosed with ASD in early care services, focusing on their children's social skills and the family's cultural values. For this purpose, a semi-structured interview was conducted with 17 parents and a qualitative thematic analysis was made based on the principles of Gadamer's hermeneutic phenomenology. Three main themes could be identified: the emotional process of the parents upon receiving the diagnosis, the unanticipated obstacles and coping strategies they use, and the role of cultural family values that maintain the family dynamics. Part of the findings emphasize the need for greater parental mental health care, the social difficulties faced by both parents and their children, and the importance of support networks and parental values in raising their children.
期刊介绍:
Archives of Psychiatric Nursing disseminates original, peer-reviewed research that is of interest to psychiatric and mental health care nurses. The field is considered in its broadest perspective, including theory, practice and research applications related to all ages, special populations, settings, and interdisciplinary collaborations in both the public and private sectors. Through critical study, expositions, and review of practice, Archives of Psychiatric Nursing is a medium for clinical scholarship to provide theoretical linkages among diverse areas of practice.