Advancing neonatal autopsy by strengthening physician belief and fostering effective family communication.

Abstract

With decreasing rates of neonatal autopsies, it is crucial to raise awareness among medical professionals about the fundamental information obtained from this procedure. Despite new medical advancements, an autopsy is still one of the most reliable methods to determine cause of death. Yet physicians and medical students receive limited exposure and training regarding the value of neonatal autopsies, which likely is contributing to the declining number of autopsies in the United States. Additionally, the emotional state of parents around the death of their infant can increase the discomfort healthcare professionals feel about broaching autopsy conversations with the family. Thus, it is pivotal for physicians and other clinicians to be aware of the benefits of neonatal autopsies and become comfortable communicating this information to families in a timely and appropriate manner. In this article, we provide recommendations to fill these knowledge and communication gaps by presenting common concerns and considerations surrounding autopsy discussion and how to address them. Included are example scripts for conversations that model requesting consent for autopsy at a painful time. This article is intended for neonatologists and pediatricians, as well as other healthcare professionals and trainees. IMPACT: Neonatal autopsies are vital yet often overlooked. This article presents challenges that physicians face in discussing the autopsy process with grieving families and offers practical insights into these complex conversations.