Perspectives on Palliative Care Approaches in People with Advanced COPD: A Qualitative Study of Patients Attending a Breathe Easy Clinic and Day Hospice.

IF 2.6 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
International Journal of Integrated Care Pub Date : 2025-03-28 eCollection Date: 2025-01-01 DOI:10.5334/ijic.7748
Barbara Gonçalves, Joanne Lusher, Audrey Cund, Caroline Sime, Eileen Harkess-Murphy
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引用次数: 0

Abstract

Introduction: People with advanced chronic obstructive pulmonary disease (COPD) are well recognised to experience high levels of unaddressed physical and psychosocial symptom burden. Palliative care provides viable support that strives to relieve the sufferings and optimise quality of life for patients. This study aimed to identify factors that contribute to satisfaction and well-being of people with advanced COPD while attending services which offer palliative care approaches.

Methods: A descriptive exploratory qualitative study using semi-structured interviews was conducted. Nineteen participants (67 ± 9 years) were recruited through Breathe Easy clinic (n = 13), and day hospice (n = 6) in the United Kingdom.

Results: Both types of services were noted for bringing substantial contributions to patients' lives. Healthcare professionals' empathy and skilled communication were particularly important, with participants adjusting and accepting their limitations more easily when they understood their disease. Early introduction to services with palliative care approaches, along with referrals to support groups and education, helped normalise their experiences and improve symptom management.

Conclusion: Providing psychological and educational interventions can lead to improvements in social aspects of patients' lives or the development of self-management techniques to cope with the disease both physically and mentally. Early palliative care involvement is essential in this population.

晚期慢性阻塞性肺病患者对姑息治疗方法的看法:对 "轻松呼吸 "诊所和日间临终关怀患者的定性研究。
导言:众所周知,晚期慢性阻塞性肺疾病(COPD)患者会经历高水平的未解决的身体和社会心理症状负担。姑息治疗提供可行的支持,努力减轻痛苦和优化患者的生活质量。本研究旨在确定在提供姑息治疗方法的服务中,晚期COPD患者满意度和幸福感的影响因素。方法:采用半结构化访谈法进行描述性探索性质的研究。通过英国Breathe Easy诊所(n = 13)和日间临终关怀(n = 6)招募19名参与者(67±9岁)。结果:两种类型的服务都为患者的生活带来了实质性的贡献。医疗专业人员的同理心和熟练的沟通尤为重要,当参与者了解自己的疾病时,他们更容易调整和接受自己的局限性。早期采用姑息治疗方法的服务,以及转介到支持团体和教育,有助于使他们的经历正常化并改善症状管理。结论:提供心理和教育干预可以改善患者生活的社会方面或发展自我管理技术,以应对身体和精神上的疾病。在这一人群中,早期参与姑息治疗至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
International Journal of Integrated Care
International Journal of Integrated Care HEALTH CARE SCIENCES & SERVICES-
CiteScore
3.80
自引率
8.30%
发文量
887
审稿时长
>12 weeks
期刊介绍: Established in 2000, IJIC’s mission is to promote integrated care as a scientific discipline. IJIC’s primary purpose is to examine critically the policy and practice of integrated care and whether and how this has impacted on quality-of-care, user experiences, and cost-effectiveness. The journal regularly publishes conference supplements and special themed editions. To find out more contact Managing Editor, Susan Royer. The Journal is supported by the International Foundation for Integrated Care (IFIC).
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