Approaches to self-management integration and influencing factors in everyday life after spinal cord injury: A qualitative narrative analysis

Abstract

Objective

This study explores how individuals with spinal cord injury (SCI) integrate self-management (SM) into their everyday lives post-discharge from initial rehabilitation. It focuses on identifying the approaches they employ in balancing health tasks with personal and societal roles and the influencing factors.

Methods

We conducted semi-structured interviews with 32 participants, recruited from four rehabilitation centers across Switzerland, three months post-rehabilitation. Data collection spanned from November 2022 to May 2024. We used thematic analysis to identify the challenges and strategies associated with SM integration.

Results

Three factors were found to influence SM integration: mind and body dynamics, encompassing physical and emotional aspects; environmental and informational dynamics, including external support, accessible facilities, and availability of information; and society and perception dynamics, including social stigma and misconceptions. These factors shaped the different approaches individuals adopted to integrate SM: The compartmentalizing approach, where individuals focused on one aspect at a time; The mixing approach, where both health and other tasks were prioritized but adjusted; and The embedding approach, where there was equal prioritization with no adjustment on either side.

Conclusions

This study contributes to a more nuanced understanding of how to balance both medical and role management in SCI post-discharge. Self-management integration is achieved through different approaches and influenced by a wide range of factors, internal and external ones. Further research should longitudinally explore whether the approach one individual employs changes with the time and what aspects reinforce one or the other.

Practical implications

Our findings highlight the need for flexible, personalized SM interventions that are contextually grounded but also adaptive and resilient. Rehabilitation settings should assess different SM integration approaches, using feedback to guide individuals in refining their strategies. Communication guidelines and tailored education sessions are recommended to help align SM practices with patients' evolving goals, including family, social, and leisure priorities.