Family Needs in Parental Cancer: A Qualitative Analysis of Contextual Factors From the Perspective of Healthy Parents—Results From the Family-SCOUT Study
Johanna Weiß, Nicole Ernstmann, Christian Heuser, Hannah Nakata, Evamarie Brock-Midding, Rebecca Horbach-Bremen, Tim H. Brümmendorf, Manuela Brüne, Marc Dohmen, Barbara Drueke, Franziska Geiser, Steffen Holsteg, Andrea Icks, André Karger, Jens Panse, Andrea Petermann-Meyer, Anja Viehmann, Lina Heier
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Abstract
Introduction: Parental cancer affects the whole family and can have negative impact on family as a system as well as on single family members. This multicentre, prospective, interventional and non-randomized family-SCOUT study aimed to implement a comprehensive psychosocial intervention to provide support for the family during and after the disease. The purpose of this study is to analyse the contextual factors that impact the subjective perceived effectiveness of family-scout support for families affected by parental cancer from the healthy parents’ perspective.
Methods: Semi-structured interviews with the healthy parent as a surrogate of family-SCOUT families from the intervention group were conducted. All interviews were audio-recorded, transcribed and analysed using template analysis.
Results: Within two years, 23 interviews were conducted. Four themes were identified, highlighting contextual factors that indicate successful support for families: Ability to meet the support needs of families; cancer as a family disease—burdens in the context of the family system; coping strategies—how the individual family members deal with the situation and communication within the family.
Conclusion: Family-scouts can provide beneficial support to families affected by parental cancer, but individual time of the families, communication and stress factors need to be taken into consideration.
期刊介绍：
The European Journal of Cancer Care aims to encourage comprehensive, multiprofessional cancer care across Europe and internationally. It publishes original research reports, literature reviews, guest editorials, letters to the Editor and special features on current issues affecting the care of cancer patients. The Editor welcomes contributions which result from team working or collaboration between different health and social care providers, service users, patient groups and the voluntary sector in the areas of:
- Primary, secondary and tertiary care for cancer patients
- Multidisciplinary and service-user involvement in cancer care
- Rehabilitation, supportive, palliative and end of life care for cancer patients
- Policy, service development and healthcare evaluation in cancer care
- Psychosocial interventions for patients and family members
- International perspectives on cancer care
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