A look at caregivers for community-living persons with dementia: Implications for the GUIDE model

IF 13 1区医学 Q1 CLINICAL NEUROLOGY

Alzheimer's & Dementia Pub Date : 2025-03-29 DOI:10.1002/alz.70013

Julia G. Burgdorf, Vicki A. Freedman, Jennifer L. Wolff

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Abstract

INTRODUCTION

Medicare's new Guiding an Improved Dementia Experience (GUIDE) model funds integrated dementia care and related caregiver supports for community-living persons with dementia (PwD). Caregiver strain is a factor in provider payment and performance.

METHODS

We examined national survey data on community-living PwD and their caregivers to identify which caregivers would receive support under GUIDE and characterize caregiver strain and use of supportive services.

RESULTS

Half of GUIDE-eligible PwD received care from multiple caregivers and high strain was common even among caregivers considered “low-complexity” under GUIDE. Use of role-related training, respite care, and support groups were low (11%, 18%, and 4%, respectively) and did not vary with caregiver strain.

DISCUSSION

Caregiver identification and assessment standards under GUIDE may overlook a significant number of caregivers. To maximize impact, innovative models like GUIDE should align caregiver engagement and services with the unique realities of care networks for PwD.

Highlights

Half of GUIDE-eligible persons with dementia have multiple caregivers.
32% of caregivers for community-living PwD report high strain.
11% of caregivers for community-living PwD received training and 18% used respite care.

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来源期刊

Alzheimer's & Dementia 医学-临床神经学

CiteScore

14.50

自引率

5.00%

发文量

299

审稿时长

3 months

期刊介绍： Alzheimer's & Dementia is a peer-reviewed journal that aims to bridge knowledge gaps in dementia research by covering the entire spectrum, from basic science to clinical trials to social and behavioral investigations. It provides a platform for rapid communication of new findings and ideas, optimal translation of research into practical applications, increasing knowledge across diverse disciplines for early detection, diagnosis, and intervention, and identifying promising new research directions. In July 2008, Alzheimer's & Dementia was accepted for indexing by MEDLINE, recognizing its scientific merit and contribution to Alzheimer's research.